ArticleBMC pediatrics2014
Parents' experiences of communication with neonatal intensive-care unit staff: an interview study.
Article in BMC pediatrics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers.
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Who cites it
60 citing papers in PubMed, 172 citations in OpenAlex.
- Effectiveness of Alberta Family Integrated Care on infant length of stay in level II neonatal intensive care units: a cluster randomized controlled trial.BMC pediatrics · 2020Trial
- Using journey mapping to capture parents' experiences across phases of neonatal care: a qualitative study.BMC pediatrics · 2026Article
- Early dyadic interventions for critically ill neonates: a scoping review.Maternal health, neonatology and perinatology · 2026Review
- Neonatal units as physical spaces for newborn care delivery in Kenya: A qualitative study.International journal of nursing studies · 2025Article
- Article
- Psychological and Spiritual Support for Parents of a Premature Baby in the Intensive Care Unit: Scoping Review.Healthcare (Basel, Switzerland) · 2025Review
- Effects of a virtual supportive program on the knowledge of mothers of preterm infants and their bonding.Infant mental health journal · 2025Article
- Voices of parents of children with major congenital anomalies admitted to the NICU: initial diagnosis, hospitalization, and discharge home.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Winanga-Li (I Hear You): Privileging Voices and Experiences of Aboriginal Parents' Journey with Their Gaaynggal (Baby) Through a Neonatal Intensive Care Unit.International journal of environmental research and public health · 2025Article
- Communication Difficulties Faced by Mothers of Neonates in Selected Neonatal Care Units.Cureus · 2025Article
- Article
- Facilitators and barriers to parental involvement in neonatal pain management in the NICU: a scoping review.BMJ open · 2025Article
- The fragile dialogue: communication barriers, authority and adaptive strategies in NICU parent-healthcare worker relationships.Frontiers in sociology · 2025Article
- Article
- Formulating parents' feelings: Analyzing parent-nurse conversations in family-integrated neonatal care to develop communication training.PEC innovation · 2024Article
- Parents' lived experience of early risk assessment for cerebral palsy in their young child using a mobile application after discharge from hospital in the newborn period.Annals of medicine · 2024Article
- Opinion and Beliefs of Physicians about Integrating Families into the Care System of Preterm Hospitalized Neonates- A Qualitative Experience.Indian journal of pediatrics · 2024Article
- Parenting through place-of-care disruptions: A qualitative study of parents' experiences of neonatal care.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Need and benefit of communication training for NICU nurses.PEC innovation · 2023Article
- Parental experiences of home phototherapy for neonatal hyperbilirubinemia.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAn infant's admission to a neonatal intensive-care unit (NICU) inevitably causes the parents emotional stress. Communication between parents and NICU staff is an essential part of the support offered to the parents and can reduce their emotional stress. The aim of this study was to describe parents' experiences of communication with NICU staff.
methodsA hermeneutic lifeworld interview study was performed with 18 families whose children were treated in the level III NICU at a university hospital in Sweden. The interviews were analysed to gain an interpretation of the phenomenon of how parents in the NICU experienced their communication with the staff, in order to find new ways to understand their experience.
resultsParents' experience of communication with the staff during their infant's stay at the NICU can be described by the main theme 'being given attention or ignored in their emotional situation'. The main theme derives from three themes; (1) meeting a fellow human being, (2) being included or excluded as a parent and (3) bearing unwanted responsibility.
conclusionsThis study shows that parents experienced communication with the NICU staff as essential to their management of their situation. Attentive communication gives the parents relief in their trying circumstances. In contrast, lack of communication contributes to feelings of loneliness, abandonment and unwanted responsibility, which adds to the burden of an already difficult situation. The level of communication in meetings with staff can have a decisive influence on parents' experiences of the NICU. The staff should thus be reminded of their unique position to help parents handle their emotional difficulties. The organization should facilitate opportunities for good communication between parents and staff through training, staffing and the physical health care environment.
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