ArticleBMC family practice2014
Development of the Health Literacy of Caregivers Scale - Cancer (HLCS-C): item generation and content validity testing.
Article in BMC family practice, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Measuring health literacy: A systematic review and bibliometric analysis of instruments from 1993 to 2021.PloS one · 2022Pooled it
- Health literacy in cancer caregivers: a systematic review.Journal of cancer survivorship : research and practice · 2021Pooled it
- Caregiver health literacy in head and neck cancer and its relationship with caregiver and patient psychological distress.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Development of the Swahili Cancer Health Literacy Test for use in the African context.African journal of primary health care & family medicine · 2026Article
- Latent profile analysis and influencing factors of health literacy among family caregivers of cancer patients.Frontiers in public health · 2026Article
- Mapping health literacy challenges among COPD caregivers: a scoping review.Frontiers in public health · 2026Article
- Health literacy, eHealth literacy and their association with burden, distress, and self-efficacy among cancer caregivers.Frontiers in psychology · 2024Article
- Is the health literacy of informal caregivers associated with the psychological outcomes of breast cancer survivors?Journal of cancer survivorship : research and practice · 2021Article
- Measuring consumer access, appraisal and application of services and information for dementia (CAAASI-Dem): a key component of dementia literacy.BMC geriatrics · 2020Article
- Assessing health literacy in the eastern and middle-eastern cultures.BMC public health · 2016Article
- Health Literacy Measure for Adolescents (HELMA): Development and Psychometric Properties.PloS one · 2016Article
- Health literacy and its correlates in informal caregivers of adults with memory loss.Geriatric nursing (New York, N.Y.)Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundHealth literacy refers to an individual's ability to engage with health information and services. Cancer caregivers play a vital role in the care of people with cancer, and their capacity to find, understand, appraise and use health information and services influences how effectively they are able to undertake this role. The aim of this study was to develop an instrument to measure health literacy of cancer caregivers.
methodContent areas for the new instrument were identified from a conceptual model of cancer caregiver health literacy. Item content was guided by statements provided by key stakeholders during consultation activities and selected to be representative across the range of cancer caregiver experiences. Content validity of items was assessed through expert review (n = 7) and cognitive interviews with caregivers (n = 16).
resultsAn initial pool of 82 items was generated across 10 domains. Two categories of response options were developed for these items: agreement with statements, and difficulty undertaking presented tasks. Expert review revealed that the majority of items were relevant and clear (Content Validity Index > 0.78). Cognitive interviews with caregivers suggested that all except three items were well understood.
conclusionA resultant 88 item questionnaire was developed to assess cancer caregiver health literacy. Further work is required to assess the construct validity and reliability of the new measure, and to remove poorly performing and redundant items, which will result in a shorter, final measure. The new measure has the potential to inform the development and evaluation of interventions and the improvement of health service delivery to cancer caregivers.
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