ArticleTopics in spinal cord injury rehabilitation2014
Definitions of quality of life: what has happened and how to move on.
Article in Topics in spinal cord injury rehabilitation, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 178 papers, 18 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
178 citing papers in PubMed, 18 syntheses or guidelines pooled it.
- Effects of Nurse-Led Interventions on Quality of Life and Self-Care Among Patients With Heart Failure: A Systematic Review.Scandinavian journal of caring sciences · 2026Pooled it
- Psychosocial interventions and health-related quality of life in adults with incurable cancer: systematic review.BMJ supportive & palliative care · 2025Pooled it
- Psychosocial factors associated with quality of life in cancer patients undergoing treatment: an umbrella review.Health and quality of life outcomes · 2025Pooled it
- Psychosocial factors associated with quality of life in cancer survivors: umbrella review.Journal of cancer research and clinical oncology · 2024Pooled it
- A systematic review and meta-analysis of the effects of non-pharmacological interventions on quality of life in adults with multiple sclerosis.European journal of medical research · 2023Pooled it
- Quality of life in individuals with primary hyperhidrosis: a systematic review and meta-analysis.Clinical autonomic research : official journal of the Clinical Autonomic Research Society · 2023Pooled it
- Health-related quality of life in adults with low-grade gliomas: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Pooled it
- Therapeutic benefits of lower limb prostheses: a systematic review.Journal of neuroengineering and rehabilitation · 2023Pooled it
- Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review.Journal of applied research in intellectual disabilities : JARID · 2023Pooled it
- Patient choice in colorectal cancer treatment - A systematic review and narrative synthesis of attribute-based stated preference studies.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2022Pooled it
- Physical environmental designs in residential care to improve quality of life of older people.The Cochrane database of systematic reviews · 2022Pooled it
- Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis.Journal of geriatric psychiatry and neurology · 2021Pooled it
- Pooled it
- Impact of informal cancer caregiving across the cancer experience: A systematic literature review of quality of life.Palliative & supportive care · 2020Pooled it
- Activities of Daily Living and Associated Costs in the Most Widespread Neurodegenerative Diseases: A Systematic Review.Clinical interventions in aging · 2020Pooled it
- Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury.Topics in spinal cord injury rehabilitation · 2019Pooled it
- A systematic review of the application of Wilson and Cleary health-related quality of life model in chronic diseases.Health and quality of life outcomes · 2017Pooled it
- A systematic literature review of health state utility values in head and neck cancer.Health and quality of life outcomes · 2017Pooled it
- A Longitudinal Examination of Quality of Life of Older Adults with Complicated Grief Receiving Accelerated Resolution Therapy.Journal of palliative medicine · 2022Trial
- The Efficacy of an Intensive Lifestyle Modification Program on Psychosocial Outcomes among Rural Women with Prior Gestational Diabetes Mellitus: Six Months Follow-Up of a Randomized Controlled Trial.International journal of environmental research and public health · 2021Trial
118 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundQuality of life (QOL) is an important outcome in spinal cord injury (SCI) rehabilitation, but it is unclear how to define and measure it.
objectiveThe aims of this article are to (a) show how the concepts of QOL and health-related quality of life (HRQOL) have evolved over time, (b) describe the various ways QOL has been defined and measured, and (c) provide recommendations on how to be as clear and consistent as possible in QOL research.
methodA narrative review of the QOL literature was performed.
resultsRoots of the term "quality of life" in health care can be traced back to the definition of health by the World Health Organization in 1948. The use of the word "well-being" in this definition is probably a main factor in the continuing confusion about the conceptualization of QOL. Within the field of SCI rehabilitation, the Dijkers's QOL model, distinguishing between utilities, achievements, and subjective evaluations and reactions, has been very influential and the basis for several reviews and databases. Nevertheless, literature shows that it is still difficult to consistently use the term "quality of life" and categorize QOL measures. Several aspects of QOL that are specific for individuals with SCI have been identified.
conclusionsResearchers should be as specific and clear as possible about the concept and operationalization of QOL in their studies. Readers should not take the term "quality of life" for granted, but should inspect the topic of the study from the actual measures used.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.