ArticleJournal of pediatric psychology2015
A longitudinal examination of health-related quality of life in children and adolescents with spina bifida.
Article in Journal of pediatric psychology, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03410667 (A Patient-centered Approach to Urinary Incontinence and Quality of Life in Children and Adolescents With Spina Bifida), which is not on this map. Cited by 28 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
A Patient-centered Approach to Urinary Incontinence and Quality of Life in Children and Adolescents With Spina Bifida
Who cites it
28 citing papers in PubMed.
- Trajectories of Health-Related Quality of Life Among Children With Newly Diagnosed Epilepsy.Journal of pediatric psychology · 2016Trial
- Self-management in youth with spina bifida: predictors of health and quality of life outcomes.Disability and rehabilitation · 2026Article
- Factors Affecting the Quality of Life of Parents of Children With Spina Bifida: The Mediating Role of Family Resilience.Journal of advanced nursing · 2026Observational
- Maternal Subcutaneous Seroma following Open Maternal Fetal Surgery for Closure of Fetal Open Neural Tube Defects.Fetal diagnosis and therapy · 2026Article
- Adaptation of the German language version of the QUAlity of life assessment of spina bifida for adults (QUALAS-A-G).The journal of spinal cord medicine · 2025Article
- The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.Journal of pediatric psychology · 2025Article
- Emergency department utilization by spina bifida patients in Florida 2016-2020.Journal of rehabilitation medicine · 2025Article
- Using a mobile health app in a weight management program for overweight and obese adolescents and young adults with spina bifida.The journal of spinal cord medicine · 2024Article
- Memory in Spina Bifida, from Childhood to Adulthood: A Systematic Review.Journal of clinical medicine · 2024Review
- Epidemiology and morbidity of spina bifida in Hispanic Americans: a systematic review.BMJ public health · 2024Article
- Evaluating the role for regional analgesia in children with spina bifida: a retrospective observational study comparing the efficacy of regional versus systemic analgesia protocols following major urological surgery.Regional anesthesia and pain medicine · 2023Observational
- The Association of Health Literacy with Health-Related Quality of Life in Youth and Young Adults with Spina Bifida: A Cross-Sectional Study.The Journal of pediatrics · 2022Article
- Needs and Research Priorities for Young People with Spinal Cord Lesion or Spina Bifida and Their Caregivers: A National Survey in Switzerland within the PEPSCI Collaboration.Children (Basel, Switzerland) · 2022Article
- Health-related quality of life in 4-to-6-year-old children with type 1 diabetes mellitus estimated by children and their mothers.European journal of pediatrics · 2022Article
- Association of ethnicity and adaptive functioning with health-related quality of life in pediatric myelomeningocele.Journal of pediatric rehabilitation medicine · 2022Article
- Child, Parent, and Family Adjustment for Patients Followed in a Multidisciplinary Spina Bifida Clinic.Topics in spinal cord injury rehabilitation · 2022Article
- The Quality of Life of Children with Myelomeningocele: A Cross-Sectional Preliminary Study.International journal of environmental research and public health · 2021Article
- Sociodemographic factors and health-related, neuropsychological, and psychosocial functioning in youth with spina bifida.Rehabilitation psychology · 2021Article
- The Transition to Adult Health Care in Youth With Spina Bifida: Theory, Measurement, and Interventions.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2021Article
- Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.Journal of pediatric psychology · 2020Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveThe current study examined (1) spina bifida (SB) youths' health-related quality of life (HRQOL) compared with nonclinical and chronic health condition (CHC) samples, (2) parent-child agreement regarding HRQOL, and (3) prospective changes in HRQOL.
methodsChild and parent-proxy reports of Pediatric Quality of Life were collected at two time waves (Time 1: N = 134, ages 8-15 years; Time 2: N = 109, ages 10-17 years) as part of a larger longitudinal study.
resultsSB youth had statistically and clinically reduced physical HRQOL compared with the nonclinical and CHC samples at both time points. There were significant discrepancies between youth and parent-proxy reports of HRQOL; youth reported higher levels of physical and social HRQOL than parents. The majority of parent- and child-reported HRQOL domains remained stable, yet youth-reported social HRQOL increased over time.
conclusionsYouth with SB are at risk for poor HRQOL. Examining modifiable condition and social-environmental predictors of youth HRQOL will be important in informing future interventions.
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