ArticleInternational journal of environmental research and public health2014
Patient-reported outcome measures and risk factors in a quality registry: a basis for more patient-centered diabetes care in Sweden.
Article in International journal of environmental research and public health, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- Patient-reported outcomes and health-related quality of life in individuals living with, through, and beyond cancer in Sweden: a cross-sectional study.Journal of patient-reported outcomes · 2026Article
- Psychometric Evaluation of the Arabic Version of the Swedish National Diabetes Registers Instrument for Patient-Reported Experience and Outcome Measures.Healthcare (Basel, Switzerland) · 2026Article
- Using mHealth applications for self-care - An integrative review on perceptions among adults with type 1 diabetes.BMC endocrine disorders · 2022Review
- The participatory development of a national core set of person-centred diabetes outcome constructs for use in routine diabetes care across healthcare sectors.Research involvement and engagement · 2021Article
- Article
- Patients' and Health Care Professionals' Perceptions of the Potential of Using the Digital Diabetes Questionnaire to Prepare for Diabetes Care Meetings: Qualitative Focus Group Interview Study.Journal of medical Internet research · 2020Article
- Quality of life in chronic conditions using patient-reported measures and biomarkers: a DEA analysis in type 1 diabetes.Health economics review · 2019Article
- Article
- Mechanisms for improving diabetes patient-provider communication through optimal use of e-clinical technologies.Patient preference and adherence · 2019Article
- Article
- Health-system-based interventions to improve care in pediatric and adolescent type 1 diabetes.Current diabetes reports · 2015Review
- New approaches to providing individualized diabetes care in the 21st century.Current diabetes reviews · 2015Review
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Diabetes is one of the chronic diseases that constitute the greatest disease burden in the world. The Swedish National Diabetes Register is an essential part of the diabetes care system. Currently it mainly records clinical outcomes, but here we describe how it has started to collect patient-reported outcome measures, complementing the standard registry data on clinical outcomes as a basis for evaluating diabetes care. Our aims were to develop a questionnaire to measure patient abilities and judgments of their experience of diabetes care, to describe a Swedish diabetes patient sample in terms of their abilities, judgments, and risk factors, and to characterize groups of patients with a need for improvement. Patient abilities and judgments were estimated using item response theory. Analyzing them together with standard risk factors for diabetes comorbidities showed that the different types of data describe different aspects of a patient's situation. These aspects occasionally overlap, but not in any particularly useful way. They both provide important information to decision makers, and neither is necessarily more relevant than the other. Both should therefore be considered, to achieve a more complete evaluation of diabetes care and to promote person-centered care.
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