ArticleAmerican journal of Alzheimer's disease and other dementias2015
Caregiving for a loved one with dementia at the end of life: an emergent theory of rediscovering.
Article in American journal of Alzheimer's disease and other dementias, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.
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Who cites it
7 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Similarities and differences in the prevalence and risk factors of suicidal behavior between caregivers and people with dementia: a systematic review.BMC geriatrics · 2024Pooled it
- Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.Palliative medicine · 2019Pooled it
- Cross-cultural conceptualization of a good end of life with dementia: a qualitative study.BMC palliative care · 2022Article
- Article
- Constructing stability - a classic grounded theory of next-of-kin in palliative cancer care.BMC palliative care · 2020Article
- Health-Care-Associated Infections Management, sow the seed of good habits: a grounded theory study.Acta bio-medica : Atenei Parmensis · 2019Article
- Thematic analysis of blog narratives written by people with Alzheimer's disease and other dementias and care partners.Dementia (London, England)Article
Corrections and comments
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Authors and funding
1 author.
Funding
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Abstract
Millions face the challenges of caregiving for a loved one with dementia. A classic Glaserian grounded theory methodology was used to discover the problem that caregivers of individuals with dementia face at the end of life and how they attempt to resolve that problem. Data were collected from a theoretical sample of 101 participants through in-person interviews, online interviews, book and blog memoirs of caregivers, and participant observation. Constant comparative method revealed a basic social psychological problem of role entrapment. Caregivers attempt to resolve this problem through a 5-stage basic social psychological process of rediscovering including missing the past, sacrificing self, yearning for escape, reclaiming identity, and finding joy. Health care professionals can support caregivers through this journey by validating, preparing caregivers for future stages, and encouraging natural coping strategies identified in this process. This study provides a substantive theory that may serve as a framework for future studies.
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