Observational studyPediatric transplantation2015
Pediatric solid organ transplant recipients: transition to home and chronic illness care.
Observational study in Pediatric transplantation, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 68 citations in OpenAlex.
- Risk factors associated with 31-day unplanned hospital readmission in newborns: a systematic review.European journal of pediatrics · 2023Pooled it
- Parental Management of Discharge Instructions: A Systematic Review.Pediatrics · 2017Pooled it
- Sociodemographic and Clinical Factors Impact Non-Live Vaccine Coverage After Pediatric Solid Organ Transplantation: A Single Center Study.Pediatric transplantation · 2026Article
- Understanding Disease Aetiology and Related Needs Knowledge of Parents of Children With Spina Bifida.Child: care, health and development · 2026Article
- Supporting discharge preparation for children with medical complexity: a scoping review.BMC nursing · 2025Article
- Multidisciplinary approach to optimizing long-term outcomes in pediatric kidney transplant recipients: multifaceted needs, risk assessment strategies, and potential interventions.Pediatric nephrology (Berlin, Germany) · 2025Review
- Exploration of the Evidence on Discharge From Hospital to Home for Children With Medical Complexity and Their Parents: A Review of the Literature.Child: care, health and development · 2025Review
- Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review.BMC pediatrics · 2024Article
- Self-management in adults after solid-organ transplantation: a scoping review protocol.BMJ open · 2023Article
- Feasibility and Acceptability of a mHealth Self-Management Intervention for Pediatric Transplant Families.Western journal of nursing research · 2022Article
- One Size Does Not Fit All: Discharge Teaching and Child Challenging Behaviors.Western journal of nursing research · 2022Article
- Parental Disease Specific Knowledge and Its Impact on Health-Related Quality of Life.Children (Basel, Switzerland) · 2022Article
- An mHealth App-Based Self-management Intervention for Family Members of Pediatric Transplant Recipients (myFAMI): Framework Design and Development Study.JMIR nursing · 2022Article
- Factors of Parents-Reported Readiness for Hospital Discharge in Children with Acute Leukemia: A Cross-Sectional Study.Journal of healthcare engineering · 2022Article
- Mobility and freedom of movement: A novel out-of-hospital treatment for pediatric patients with terminal cardiac insufficiency and a ventricular assist device.Frontiers in cardiovascular medicine · 2022Article
- Two Sides of a Coin: Parental Disease-Specific Training as Seen by Health Care Practitioners and Parents in Pediatric Liver Transplantation.Children (Basel, Switzerland) · 2021Article
- Tracing the Use of the Family Management Framework and Measure: A Scoping Review.Journal of family nursing · 2021Article
- Pilot study protocol of a mHealth self-management intervention for family members of pediatric transplant recipients.Research in nursing & health · 2020Article
- Children's complex care needs: a systematic concept analysis of multidisciplinary language.European journal of pediatrics · 2018Review
- Engaging Parents in Education for Discharge (ePED): Evaluating the Reach, Adoption & Implementation of an Innovative Discharge Teaching Method.Journal of pediatric nursingArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors at 8 institutions in 1 country.
Funding
Abstract
Pediatric SOT recipients are medically fragile and present with complex care issues requiring high-level management at home. Parents of hospitalized children have reported inadequate preparation for discharge, resulting in problems transitioning from hospital to home and independently self-managing their child's complex care needs. The aim of this study was to investigate factors associated with the transition from hospital to home and chronic illness care for parents of heart, kidney, liver, lung, or multivisceral recipients. Fifty-one parents from five pediatric transplant centers completed questionnaires on the day of hospital discharge and telephone interviews at three wk, three months, and six months following discharge from the hospital. Care coordination (p = 0.02) and quality of discharge teaching (p < 0.01) was significantly associated with parent readiness for discharge. Readiness for hospital discharge was subsequently significantly associated with post-discharge coping difficulty (p = 0.02) at three wk, adherence with medication administration (p = 0.03) at three months, and post-discharge coping difficulty (p = 0.04) and family management (p = 0.02) at six months post-discharge. The results underscore the important aspect of education and care coordination in preparing patients and families to successfully self-manage after hospital discharge. Assessing parental readiness for hospital discharge is another critical component for identifying risk of difficulties in managing post-discharge care.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.