ArticleMaternal and child health journal2015
Meeting the needs of children with medical complexity using a telehealth advanced practice registered nurse care coordination model.
Article in Maternal and child health journal, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Case Management for Enhancing Wellbeing, Resilience, and Quality of Life in Caregivers of Children and Adolescents With Chronic Illnesses and Disabilities: A Systematic Review and Meta-Analysis.Nursing & health sciences · 2025Pooled it
- Integrated care for children and young people with special health and care needs: a systematic review.Archives of disease in childhood · 2024Pooled it
- Comprehensive care programmes for children with medical complexity.The Cochrane database of systematic reviews · 2024Pooled it
- Barriers and Facilitators for Implementing Paediatric Telemedicine: Rapid Review of User Perspectives.Frontiers in pediatrics · 2021Pooled it
- Effects of a Telehealth Care Coordination Intervention on Perceptions of Health Care by Caregivers of Children With Medical Complexity: A Randomized Controlled Trial.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- The Impact of Telehealth and Care Coordination on the Number and Type of Clinical Visits for Children With Medical Complexity.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & PractitionersTrial
- Digital Health Technology Applications in Home Care for Children With Complex Medical Conditions: A Scoping Review.Journal of advanced nursing · 2026Article
- The Role of Nurses Caring for Children Diagnosed with Sickle Cell Anemia and Their Families in a Hospital Setting: A Rapid Review of the Recent Literature.Healthcare (Basel, Switzerland) · 2025Review
- Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review.BMC pediatrics · 2024Article
- Using health information technology to support the needs of Children with Medical Complexity: Mapping review of consumer informatics applications.Frontiers in digital health · 2022Review
- COVID-19 Lessons From The Field: Toward A Pediatric Physical Therapy Telehealth Framework.International journal of telerehabilitation · 2022Article
- Impact of telemedicine on health outcomes in children with medical complexity: an integrative review.European journal of pediatrics · 2021Review
- Parent Perspective on Care Coordination Services for Their Child with Medical Complexity.Children (Basel, Switzerland) · 2017Article
- Strategies to Maximize Data Collection Response Rates in a Randomized Control Trial Focused on Children with Medical Complexity.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2016Article
- "I Could Stop and Breathe": Early Implementation Results of a Short-Term Care Coordination Model for Children with Medical Complexity.International journal of integrated careArticle
- Care coordination, medical complexity, and unmet need for prescription medications among children with special health care needs.Research in social & administrative pharmacy : RSAPArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
Effective care coordination is a key quality and safety strategy for populations with chronic conditions, including children with medical complexity (CMC). However, gaps remain in parent report of the need for care coordination help and receipt of care coordination help. New models must close this gap while maintaining family-centered focus. A three-armed randomized controlled trial conducted in an established medical home utilized an advanced practice registered nurse intervention based on Presler's model of clinic-based care coordination. The model supported families of CMC across settings using telephone only or telephone and video telehealth care coordination. Effectiveness was evaluated from many perspectives and this paper reports on a subset of outcomes that includes family-centered care (FCC), need for care coordination help and adequacy of care coordination help received. FCC at baseline and end of study showed no significant difference between groups. Median FCC scores of 18.0-20.0 across all groups indicated high FCC within the medical home. No significant differences were found in the need for care coordination help within or between groups and over time. No significant difference was found in the adequacy of help received between groups at baseline. However, this indicator increased significantly over time for both intervention groups. These findings suggest that in an established medical home with high levels of FCC, families of CMC have unmet needs for care coordination help that are addressed by the APRN telehealth care coordination model.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.