ArticleChronic illness2015
Chronic kidney disease (CKD) treatment burden among low-income primary care patients.
Article in Chronic illness, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 5 of them syntheses that pooled it.
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Who cites it
31 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Challenges and strategies for managing early-to-moderate chronic kidney disease in primary care: A systematic integrative review in high-income countries.The European journal of general practice · 2026Pooled it
- Effect of non-surgical periodontal therapy on renal function in chronic kidney disease patients with periodontitis: a systematic review and meta-analysis of interventional studies.Clinical oral investigations · 2020Pooled it
- Pooled it
- Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.BMJ open · 2018Pooled it
- Patient-experienced burden of treatment in patients with multimorbidity - A systematic review of qualitative data.PloS one · 2017Pooled it
- Burden of cancer trial participation: A qualitative sub-study of the INTERIM feasibility RCT.Chronic illness · 2023Trial
- Influence of social support on asthma self-management in adolescents.The Journal of asthma : official journal of the Association for the Care of Asthma · 2021Trial
- Evaluating Treatment Burden in Patients with Complex Needs Receiving a Transition of Care Intervention: A Rapid Qualitative Analysis.Clinical nursing research · 2026Article
- "Using theories" and "doing theory": tool and action orientations to theory at the interface of public health and anthropology.Frontiers in public health · 2026Article
- Differences in patient-centered burdens and economic outcomes based on sociodemographic characteristics and social determinants of health: a scoping review.Frontiers in public health · 2026Article
- Managing Health Without Stable Housing: Dimensions of Treatment Burden and Patient Capacity for People With Chronic Health Conditions Experiencing Homelessness.Qualitative health research · 2025Article
- Evidence-based nursing strategies and quality of life in Saudi CKD patients with cardio-renal-metabolic comorbidities.BMC nursing · 2025Article
- Article
- Factors associated with patient activation among patients with diabetes on hemodialysis: a multicenter cross-sectional study from a developing country.BMC nephrology · 2024Article
- Moderate Stress Level among Patients Undergoing Hemodialysis in a Tertiary Care Centre.JNMA; journal of the Nepal Medical Association · 2023Article
- North American Weight Management Programs for People Living With Chronic Kidney Disease: An Environmental Scan.Canadian journal of kidney health and disease · 2023Article
- Racial and Socioeconomic Disparities in CKD in the Context of Universal Health Care Provided by the Military Health System.Kidney medicine · 2022Article
- Applying A Biopsychosocial Framework to Achieve Durable Behavior Change in Kidney Disease.Seminars in nephrology · 2021Review
- The self-management work of food hypersensitivity.PloS one · 2021Article
- Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
objectiveThis study explored the self-management strategies and treatment burden experienced by low-income US primary care patients with chronic kidney disease.
methodsSemi-structured interviews were conducted with 34 patients from two primary care practices on Buffalo's East Side, a low-income community. Qualitative analysis was undertaken using an inductive thematic content analysis approach. We applied normalization process theory (NPT) to the concept of treatment burden to interpret and categorize our findings.
resultsThe sample was predominantly African-American (79%) and female (59%). Most patients (79%) had a diagnosis of stage 3 CKD. Four major themes were identified corresponding to NPT and treatment burden: (1) coherence--making sense of CKD; (2) cognitive participation--enlisting support and organizing personal resources; (3) collective action--self-management work; and (4) reflexive monitoring--further refining chronic illness self-care in the context of CKD. For each component, we identified barriers hindering patients' ability to accomplish the necessary tasks.
conclusionsOur findings highlight the substantial treatment burden faced by inner-city primary care patients self-managing CKD in combination with other chronic illnesses. Health care providers' awareness of treatment burden can inform the development of person-centered care plans that can help patients to better manage their chronic illnesses.
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