ArticlePloS one2014
Pediatric health-related quality of life: a structural equation modeling approach.
Article in PloS one, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Disease-specific health related quality of life patient reported outcome measures in Genodermatoses: a systematic review and critical evaluation.Orphanet journal of rare diseases · 2017Pooled it
- A systematic review of the application of Wilson and Cleary health-related quality of life model in chronic diseases.Health and quality of life outcomes · 2017Pooled it
- What Shapes Quality of Life in Youth? A Multidimensional Approach from Lifestyle to Residential Context-Cor-School Study.Healthcare (Basel, Switzerland) · 2025Article
- Designing and Validating a Hereditary Spastic Paraplegia-Specific Quality of Life Rating Scale (HSPQoL).Cerebellum (London, England) · 2024Article
- Predictors of health-related quality of life for children with neurodevelopmental conditions.Scientific reports · 2024Article
- The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning.International journal of environmental research and public health · 2022Article
- Development and Evaluation of the Quality of Life Scale for Children With Visual Impairments in China.Frontiers in pediatrics · 2022Article
- The association between birth weight and proxy-reported health-related quality of life among children aged 5 - 10 years old: A linked data analysis.BMC pediatrics · 2021Article
- Analysis of quality of life in breast cancer survivors using structural equation modelling: the role of spirituality, social support and psychological well-being.International health · 2020Article
- Measuring the health-related quality of life in young children: how far have we come?Journal of market access & health policy · 2019Review
- Understanding the Relationship Between Child Health-Related Quality of Life and Parent Emotional Functioning in Pediatric Hematopoietic Stem Cell Transplant.Journal of pediatric psychology · 2017Article
- Neonatal risk mortality scores as predictors for health-related quality of life of infants treated in NICU: a prospective cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- Longitudinal changes in health related quality of life in children with migrant backgrounds.PloS one · 2017Article
- Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study.BMC palliative care · 2016Article
- Association between social capital, health-related quality of life, and mental health: a structural-equation modeling approach.Croatian medical journal · 2016Article
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Authors and funding
7 authors.
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No grant is acknowledged in the PubMed record.
Abstract
objectivesOne of the most referenced theoretical frameworks to measure Health Related Quality of Life (HRQoL) is the Wilson and Cleary framework. With some adaptions this framework has been validated in the adult population, but has not been tested in pediatric populations. Our goal was to empirically investigate it in children.
methodsThe contributory factors to Health Related Quality of Life that we included were symptom status (presence of chronic disease or hospitalizations), functional status (developmental status), developmental aspects of the individual (social-emotional) behavior, and characteristics of the social environment (socioeconomic status and area of education). Structural equation modeling was used to assess the measurement structure of the model in 214 German children (3-5 years old) participating in a follow-up study that investigates pediatric health outcomes.
resultsModel fit was χ2 = 5.5; df = 6; p = 0.48; SRMR = 0.01. The variance explained of Health Related Quality of Life was 15%. Health Related Quality of Life was affected by the area education (i.e. where kindergartens were located) and development status. Developmental status was affected by the area of education, socioeconomic status and individual behavior. Symptoms did not affect the model.
conclusionsThe goodness of fit and the overall variance explained were good. However, the results between children' and adults' tests differed and denote a conceptual gap between adult and children measures. Indeed, there is a lot of variety in pediatric Health Related Quality of Life measures, which represents a lack of a common definition of pediatric Health Related Quality of Life. We recommend that researchers invest time in the development of pediatric Health Related Quality of Life theory and theory based evaluations.
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