Evidence map›Paper›PMID 25392743›Full record

ArticleJournal of gastrointestinal & digestive system2014

Rationale for Using Social Media to Collect Patient-Reported Outcomes in Patients with Celiac Disease.

Kt Park, Merissa Harris, Nasim Khavari, Chaitan Khosla

Abstract read
In one paragraph

Article in Journal of gastrointestinal & digestive system, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Use of technology to educate patients with celiac disease.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2025
    Review
  2. Article
  3. Review
  4. Symptom clusters in women with breast cancer: an analysis of data from social media and a research study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016
    Article
  5. Social media usage pattern and its influencing factors among celiac patients and their families.Saudi journal of gastroenterology : official journal of the Saudi Gastroenterology Association
    Article
  6. Gluten Contamination of Rice: Analytical TestingFood technology and biotechnology
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Kt ParkDivision of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA ; Center for Health Policy/Primary Care Outcomes Research, Stanford University, Stanford, CA, USA.
Merissa HarrisSchool of Medicine, George Washington University, District of Columbia, USA.
Nasim KhavariDivision of Gastroenterology, Hepatology, and Nutrition, Department of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA.
Chaitan KhoslaSchool of Medicine, George Washington University, District of Columbia, USA.

Funding

Pharmaco-economics and Optimal Strategies of Biologics Use in Inflammatory BowelK08DK094868 · NIDDK · STANFORD UNIVERSITY · PI PARK, KT · 2012 to 2016
$769k
NIDDK NIH HHS K08 DK094868
6 · The paper itself

Abstract

Patients with celiac disease (CD) are increasingly interconnected through social media, exchanging patient experiences and health-tracking information between individuals through various web-based platforms. Social media represents potentially unique communication interface between gastroenterologists and active social media users - especially young adults and adolescents with celiac disease-regarding adherence to the strict gluten-free diet, gastrointestinal symptoms, and meaningful discussion about disease management. Yet, various social media platforms may be underutilized for research purposes to collect patient-reported outcomes data. In this commentary, we summarize the scientific rationale and potential for future growth of social media in patient-reported outcomes research, focusing on college freshmen with celiac disease as a case study and provide overview of the methodological approach. Finally, we discuss how social media may impact patient care in the future through increasing mobile technology use.

Indexed as

FacebookHealthcareMobile technologyPatient-reported outcomesQuality-of-lifeSocial mediaSocial networking

Identifiers

PMID25392743
PMCPMC4226063

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.