ArticlePalliative medicine2015
Pediatric advance care planning from the perspective of health care professionals: a qualitative interview study.
Article in Palliative medicine, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
49 citing papers in PubMed, 3 syntheses or guidelines pooled it, 130 citations in OpenAlex.
- Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence.BMC palliative care · 2022Pooled it
- Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review.Palliative medicine · 2021Pooled it
- Evaluation showed that stakeholders valued the support provided by the Implementing Pediatric Advance Care Planning Toolkit.Acta paediatrica (Oslo, Norway : 1992) · 2021Pooled it
- The BOOST paediatric advance care planning intervention for adolescents with cancer and their parents: development, acceptability and feasibility.BMC pediatrics · 2022Trial
- Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.Pediatrics · 2021Trial
- A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning.AIDS care · 2017Trial
- Nurses' stressful experiences in providing palliative and end-of-life care for children: A meta-synthesis.Palliative & supportive care · 2026Review
- Life-Sustaining Treatment Decisions and Parent Caregiving Experiences for Children With Medical Complexity.JAMA network open · 2026Article
- Experiences with an Advance Care Planning Intervention for Children with Life-Limiting Conditions: A Qualitative Study of Families and Clinicians Using the IMplementing Pediatric Advance Care Planning Toolkit.Children (Basel, Switzerland) · 2026Article
- Palliative care provision for children in general practice: A retrospective cohort study.Palliative & supportive care · 2026Article
- Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice.BMC palliative care · 2026Article
- Recommendations from Multi-Disciplinary Professionals for Survivor-Informed and Comprehensive Care for Human Trafficking Survivors.Healthcare (Basel, Switzerland) · 2025Article
- Content and Comprehensiveness of Goals-of-Care Documentation in Pediatric Patients.Journal of pain and symptom management · 2025Article
- Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease.Children (Basel, Switzerland) · 2025Review
- Important factors in municipality-based pediatric palliation from healthcare professionals' perspective: A qualitative study.Palliative care and social practice · 2025Article
- Experiences with a national team-based learning program for advance care planning in pediatric palliative care.BMC palliative care · 2024Article
- Stress Factors for the Paediatric and Adult Palliative Care Multidisciplinary Team and Workplace Wellbeing Solutions.Healthcare (Basel, Switzerland) · 2024Article
- Parents' and healthcare professionals' experiences with the content of an individual care plan for pediatric palliative care: a mixed-method study.Palliative care and social practice · 2024Article
- Pediatric Advance Care Planning: A Scoping Review.Children (Basel, Switzerland) · 2023Article
- Palliative care services for children with life-limiting conditions.Irish journal of medical science · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPediatric advance care planning differs from the adult setting in several aspects, including patients' diagnoses, minor age, and questionable capacity to consent. So far, research has largely neglected the professionals' perspective.
aimWe aimed to investigate the attitudes and needs of health care professionals with regard to pediatric advance care planning.
designThis is a qualitative interview study with experts in pediatric end-of-life care. A qualitative content analysis was performed. SETTING/
participantsWe conducted 17 semi-structured interviews with health care professionals caring for severely ill children/adolescents, from different professions, care settings, and institutions.
resultsPerceived problems with pediatric advance care planning relate to professionals' discomfort and uncertainty regarding end-of-life decisions and advance directives. Conflicts may arise between physicians and non-medical care providers because both avoid taking responsibility for treatment limitations according to a minor's advance directive. Nevertheless, pediatric advance care planning is perceived as helpful by providing an action plan for everyone and ensuring that patient/parent wishes are respected. Important requirements for pediatric advance care planning were identified as follows: repeated discussions and shared decision-making with the family, a qualified facilitator who ensures continuity throughout the whole process, multi-professional conferences, as well as professional education on advance care planning.
conclusionDespite a perceived need for pediatric advance care planning, several barriers to its implementation were identified. The results remain to be verified in a larger cohort of health care professionals. Future research should focus on developing and testing strategies for overcoming the existing barriers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.