ArticleMedical decision making : an international journal of the Society for Medical Decision Making2015
Comparison of general population, patient, and carer utility values for dementia health states.
Article in Medical decision making : an international journal of the Society for Medical Decision Making, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Assessment of the construct validity and responsiveness of preference-based quality of life measures in people with Parkinson's: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Pooled it
- Item distribution, internal consistency, and structural validity of the German version of the DEMQOL and DEMQOL-proxy.BMC geriatrics · 2018Trial
- Health state values in cancer patients and the general population: evidence from SF-6Dv2.The European journal of health economics : HEPAC : health economics in prevention and care · 2026Article
- Health State Utility Values: The Implications of Patient versus Community Ratings in Assessing the Value of Care.Medical decision making : an international journal of the Society for Medical Decision Making · 2025Article
- Comparison of Caregiver and General Population Preferences for Dependency-Related Health States.Applied health economics and health policy · 2025Article
- Valuation of the EORTC Quality of Life Utility Core 10 Dimensions (QLU-C10D) in a Multi-ethnic Asian Setting: How Does Having Cancer Matter?PharmacoEconomics · 2024Article
- Developing an Australian utility value set for the Early Childhood Oral Health Impact Scale-4D (ECOHIS-4D) using a discrete choice experiment.The European journal of health economics : HEPAC : health economics in prevention and care · 2023Article
- Health Utilities of Bilateral Severe-to-Profound Hearing Loss with Assistive Devices.Healthcare (Basel, Switzerland) · 2023Article
- Evidence of a disability paradox in patient-reported outcomes in haemophilia.Haemophilia : the official journal of the World Federation of Hemophilia · 2021Article
- A qualitative exploration of the content and face validity of preference-based measures within the context of dementia.Health and quality of life outcomes · 2020Article
- Micronutrient deficiencies and health-related quality of life: the case of children with vitamin D deficiency.Public health nutrition · 2020Article
- Value judgment of new medical treatments: Societal and patient perspectives to inform priority setting in The Netherlands.PloS one · 2020Article
- Health utilities in cancer patients: A study protocol for a prospective, longitudinal cohort using online survey.Medicine · 2019Article
- Developing a dementia-specific preference--based quality of life measure (AD-5D) in Australia: a valuation study protocol.BMJ open · 2018Article
- Comparison of health state values derived from patients and individuals from the general population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- How useful is the EQ-5D in assessing the impact of caring for people with Alzheimer's disease?Health and quality of life outcomes · 2017Article
- Can the general public use vignettes to discriminate between Alzheimer's disease health states?BMC geriatrics · 2016Article
- Developing the Breast Utility Instrument to Measure Health-Related Quality-of-Life Preferences in Patients with Breast Cancer: Selecting the Item for Each Dimension.MDM policy & practiceArticle
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
Utility values to estimate quality-adjusted life years (QALYs) for use in cost-utility analyses are usually elicited from members of the general population. Public attitudes and understanding of dementia in particular may mean that values elicited from the general population may differ from patients and carers for dementia health states. This study examines how the population impacts utility values elicited for dementia health states using interviewer-administered time tradeoff valuation of health states defined by the dementia-specific preference-based measures DEMQOL-U (patient-report) and DEMQOL-Proxy-U (carer-report). Eight DEMQOL-U states were valued by 78 members of the UK general population and 71 patients with dementia of mild severity. Eight DEMQOL-Proxy-U states were valued by 77 members of the UK general population and 71 carers of patients with dementia of mild severity. Random-effects generalized least squares regression estimated the impact of population, dementia health state, and respondent sociodemographic characteristics on elicited values, finding that values for dementia health states differed by population and that the difference varied across dementia health states. Patients with dementia and carers of patients with dementia gave systematically lower values than members of the general population that were not due to differences in the sociodemographic characteristics of the populations. Our results suggest that the population used to produce dementia health state values could impact the results of cost-utility analyses and potentially affect resource allocation decisions; yet, currently, only general population values are available for usage.
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