Observational studyHealth expectations : an international journal of public participation in health care and health policy2015
Informational needs of gastrointestinal oncology patients.
Observational study in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Informational and Supportive Care Needs of Brain Metastases Patients and Caregivers: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2017Pooled it
- Evaluating the Feasibility of Educational Videos in a Medical Oncology Sarcoma Clinic to Improve Patient Knowledge and Satisfaction.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Enduring Power of Print: How Health Information Pamphlets Promote Equity and Trust in Patient Education.JCO oncology practice · 2026Article
- Information Perception and Unmet Needs in Cancer Patients Beginning Systemic Therapy: Needs for Patient Education.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Enabling Digital Compassion in Digital Health Environments: Modified eDelphi Study to Identify Interprofessional Competencies and Technology Attributes.Journal of medical Internet research · 2025Article
- Nutritional information needs and search behaviors in argentine oncology patientsRevista de la Facultad de Ciencias Medicas (Cordoba, Argentina) · 2025Article
- Development and analysis of quality assessment tools for different types of patient information - websites, decision aids, question prompt lists, and videos.BMC medical informatics and decision making · 2023Review
- Assessing the Comprehensive Training Needs of Informal Caregivers of Cancer Patients: A Qualitative Study.Current oncology (Toronto, Ont.) · 2023Article
- Assessment of quality of life, information, and supportive care needs in patients with muscle and non-muscle invasive bladder cancer across the illness trajectory.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Informational Needs of Patients with Cancer: A Qualitative Content AnalysisAsian Pacific journal of cancer prevention : APJCP · 2019Article
- Informational needs of brain metastases patients and their caregivers.Neuro-oncology practice · 2019Article
- Informational Needs of Head and Neck Cancer Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2018Observational
- Information needs of patients with lung cancer from diagnosis until first treatment follow-up.PloS one · 2018Article
- Information Needs of Hepato-Pancreato-Biliary Surgical Oncology Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2017Article
- The Persistence of the Pamphlet: On the Continued Relevance of the Health Information Pamphlet in the Digital Age.Journal of cancer education : the official journal of the American Association for Cancer Education · 2017Article
- Pancreatic cancer survivors' preferences, barriers, and facilitators related to physical activity and diet interventions.Journal of cancer survivorship : research and practice · 2016Article
- The prevalence and nature of supportive care needs in lung cancer patients.Current oncology (Toronto, Ont.) · 2016Article
- The Experience of Extended Bowel Resection in Individuals With a High Metachronous Colorectal Cancer Risk: A Qualitative Study.Oncology nursing forum · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesIn response to the dearth of consumer health information for patients with gastrointestinal cancers, this study examined the informational needs of these patients to build a plan for future resource development. Although studies have examined informational needs of some such cancers, no published literature has investigated the comprehensive informational needs across all sites of gastrointestinal cancer.
methodsA cross-sectional needs assessment comprising a self-administered questionnaire was conducted at an ambulatory gastrointestinal oncology clinic in Toronto, Canada. Patient informational needs were measured, including importance of information, amount desired and preferred mode of delivery. Informational needs were grouped into six domains: medical, practical, physical, emotional, social and spiritual.
resultsEighty-two surveys were analysed. The majority of the respondents were male (53.8%), over the age of 50 (77.8%), and born outside of Canada (51.9%). While many did not speak English as a child (46.3%), and do not speak English at home (22.2%), nearly all indicated comfort with receiving health information in English (97.5%). The majority of respondents were college educated (79.3%) and married (73%). Multiple cancer types were reported; the most common being colorectal (39%), followed by pancreatic (12%) and cancers of the gallbladder or bile duct (12%). Overall, respondents placed highest importance on medical information (P < 0.001). Preferred education modalities were pamphlets, websites and one-on-one discussions with health-care professionals.
conclusionsThis study highlights the principal informational needs of patients with gastrointestinal malignancies, along with preferred modality for information delivery. This information will guide the development of educational resources for future patients.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.