Trial reportQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2015
Engaging Latina cancer survivors, their caregivers, and community partners in a randomized controlled trial: Nueva Vida intervention.
Trial report in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 26 papers, 5 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Nueva Vida Intervention: Improving QOL in Latina Breast Cancer Survivors and Their Caregivers
The effect of better model counselling with model over sexual problems of women with breast cancer
Who cites it
26 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- The support that partners or caregivers provide sexual minority women who have cancer: A systematic review.Social science & medicine (1982) · 2020Pooled it
- Psychosocial interventions for informal caregivers of people living with cancer.The Cochrane database of systematic reviews · 2019Pooled it
- Current trends in patient and public involvement in cancer research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Communication skills training for healthcare professionals working with people who have cancer.The Cochrane database of systematic reviews · 2018Pooled it
- Life with a Primary Immune Deficiency: a Systematic Synthesis of the Literature and Proposed Research Agenda.Journal of clinical immunology · 2016Pooled it
- Trial
- Nuevo Amanecer-II: Results of a randomized controlled trial of a community-based participatory, peer-delivered stress management intervention for rural Latina breast cancer survivors.Psycho-oncology · 2020Trial
- Feasibility of implementing a culturally and linguistically adapted telephone-based cognitive-behavioral therapy (CBT) intervention for depression and anxiety with Hispanic and Latino cancer survivors.Journal of psychosocial oncology · 2025Article
- A Scoping Review to Contribute to Knowledge About Culturally Adapting Interventions for Latino Family Caregivers of Persons Living With Dementia.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2025Article
- Adapting a dyadic exercise program to be culturally relevant for Hispanic men with prostate cancer using community engagement studio: a brief report.Frontiers in psychology · 2024Article
- Predictors of Unmet Needs in Chilean Older People with Dependency: A Cross-Sectional Study.International journal of environmental research and public health · 2023Article
- Development and pilot testing of a training for bilingual community education professionals about hereditary breast and ovarian cancer among Latinas: ÁRBOLES Familiares.Translational behavioral medicine · 2022Article
- Effects of the Better Model Based Counseling on Sexuality of Women with Breast Cancer.International journal of sexual health : official journal of the World Association for Sexual Health · 2022Article
- The Dyadic Cancer Outcomes Framework: A general framework of the effects of cancer on patients and informal caregivers.Social science & medicine (1982) · 2021Review
- Factors Impacting Management of Breast Cancer-Related Lymphedema (BCRL) in Hispanic/Latina Breast Cancer Survivors: A Literature Review.Hispanic health care international : the official journal of the National Association of Hispanic Nurses · 2021Review
- Social support and healthcare utilization of caregivers of Latinas with breast cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Adult Cancer Survivors' Engagement and Interest in Patient-Centered Research.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2020Article
- ¿Ahora qué?: Cultural Adaptation of a Cancer Survivorship Intervention for Latino/a Cancer Survivors.Psycho-oncology · 2019Article
- Are patient-reported outcomes useful in post-treatment follow-up care for women with early breast cancer? A scoping review.Patient related outcome measures · 2019Article
- Patient-centered Outcomes Research in Pulmonary, Critical Care, and Sleep Medicine. An Official American Thoracic Society Workshop Report.Annals of the American Thoracic Society · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
15 authors.
Funding
Abstract
introductionFew studies have evaluated interventions to improve quality of life (QOL) for Latina breast cancer survivors and caregivers. Following best practices in community-based participatory research (CBPR), we established a multi-level partnership among Latina survivors, caregivers, community-based organizations (CBOs), clinicians, and researchers to evaluate a survivor-caregiver QOL intervention.
methodsA CBO in the mid-Atlantic region, Nueva Vida, developed a patient-caregiver program called Cuidando a mis Cuidadores (Caring for My Caregivers), to improve outcomes important to Latina cancer survivors and their families. Together with an academic partner, Nueva Vida and three CBOs established a multi-level team of researchers, clinicians, Latina cancer survivors, and caregivers to conduct a national randomized trial to compare the patient-caregiver program to usual care.
resultsIncorporating team feedback and programmatic considerations, we adapted the prior patient-caregiver program into an 8-session patient- and caregiver-centered intervention that includes skill-building workshops such as managing stress, communication, self-care, social well-being, and impact of cancer on sexual intimacy. We will measure QOL domains with the patient-reported outcomes measurement information system, dyadic communication between the survivor and caregiver, and survivors' adherence to recommended cancer care. To integrate the intervention within each CBO, we conducted interactive training on the protection of human subjects, qualitative interviewing, and intervention delivery.
conclusionThe development and engagement process for our QOL intervention study is innovative because it is both informed by and directly impacts underserved Latina survivors and caregivers. The CBPR-based process demonstrates successful multi-level patient engagement through collaboration among researchers, clinicians, community partners, survivors, and caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.