Evidence map›Paper›PMID 25348050›Full record

ArticleJournal of medical Internet research2014

Beyond traditional advertisements: leveraging Facebook's social structures for research recruitment.

Rupa S Valdez, Thomas M Guterbock, Morgan J Thompson, Jeremiah D Reilly, Hannah K Menefee, Maria S Bennici, Ishan C Williams, Deborah L Rexrode

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
34citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

34 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review.Genetics in medicine : official journal of the American College of Medical Genetics · 2021
    Pooled it
  3. Trial
  4. Observational
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  8. Review
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  12. Variations in follow-up after atrial fibrillation ablation.Journal of the American Association of Nurse Practitioners · 2020
    Article
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  14. Understanding the decision to screen for lung cancer or not: A qualitative analysis.Health expectations : an international journal of public participation in health care and health policy · 2019
    Article
  15. Observational
  16. Article
  17. Facebook Recruitment and the Protection of Human Subjects.Western journal of nursing research · 2019
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Rupa S ValdezDepartment of Public Health Sciences, University of Virginia, Charlottesville, VA, United States. rupavaldez@virginia.edu.ORCID http://orcid.org/0000-0002-5125-0793

Funding

Informing Consumer Health IT Design: How Patients Use Social Networking SitesR03HS022930 · AHRQ · UNIVERSITY OF VIRGINIA · PI VALDEZ, RUPA SHETH · 2014 to 2014
$100k
AHRQ HHS R03 HS022930AHRQ HHS R03 HS22930-01
6 · The paper itself

Abstract

backgroundObtaining access to a demographically and geographically diverse sample for health-related research can be costly and time consuming. Previous studies have reported mixed results regarding the potential of using social media-based advertisements to overcome these challenges.

objectiveOur aim was to develop and assess the feasibility, benefits, and challenges of recruiting for research studies related to consumer health information technology (IT) by leveraging the social structures embedded in the social networking platform, Facebook.

methodsTwo recruitment strategies that involved direct communication with existing Facebook groups and pages were developed and implemented in two distinct populations. The first recruitment strategy involved posting a survey link directly to consenting groups and pages and was used to recruit Filipino-Americans to a study assessing the perceptions, use of, and preferences for consumer health IT. This study took place between August and December 2013. The second recruitment strategy targeted individuals with type 2 diabetes and involved creating a study-related Facebook group and asking administrators of other groups and pages to publicize our group to their members. Group members were then directly invited to participate in an online pre-study survey. This portion of a larger study to understand existing health management practices as a foundation for consumer health IT design took place between May and June 2014. In executing both recruitment strategies, efforts were made to establish trust and transparency. Recruitment rate, cost, content of interaction, and characteristics of the sample obtained were used to assess the recruitment methods.

resultsThe two recruitment methods yielded 87 and 79 complete responses, respectively. The first recruitment method yielded a rate of study completion proportionate to that of the rate of posts made, whereas recruitment successes of the second recruitment method seemed to follow directly from the actions of a subset of administrators. Excluding personnel time, the first recruitment method resulted in no direct costs, and the second recruitment method resulted in a total direct cost of US $118.17. Messages, posts, and comments received using both recruitment strategies reflected ten themes, including appreciation, assistance, clarification, concerns, encouragement, health information, interest, promotion, solicitations, and support. Both recruitment methods produced mixed results regarding sample representativeness with respect to characteristics such as gender, race, and ethnicity.

conclusionsThe results of the study demonstrate that leveraging the social structures of Facebook for health-related research was feasible for obtaining small samples appropriate for qualitative research but not for obtaining large samples needed for quantitative research. The content of interactions with members of the target population prompted ethical deliberations concerning suitable target communities and appropriate boundaries between researchers and participants. Widespread replication of this method would benefit from a broad discussion among researchers, social media users, social media companies, and experts in research ethics to address appropriate protocols for such interactions.

Indexed as

Patient SelectionSocial MediaSocial NetworkingAdolescentAdultAgedConsumer Health InformationDisease ManagementFemaleHumansMaleMiddle AgedYoung Adultadvertisingconsumer health ITethnicityFacebookparticipant recruitmentsocial media

Identifiers

PMID25348050
PMCPMC4259909

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.