SynthesisBMC health services research2014
A systematic review of hospital experiences of people with intellectual disability.
Synthesis in BMC health services research, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06986863 (Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD), which is not on this map. Cited by 71 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Use of a Digital Snapshot to Reduce Use of Restraints During Emergency Department Visits and Improve Experience of Care for PWIDD
Who cites it
71 citing papers in PubMed, 2 syntheses or guidelines pooled it, 181 citations in OpenAlex.
- Acute service and disability service providers experiences of joint working to improve health care experiences of people with an intellectual disability compared to non-joint working: A mixed-method systematic review.Journal of intellectual disabilities : JOID · 2026Pooled it
- Do patient engagement interventions work for all patients? A systematic review and realist synthesis of interventions to enhance patient safety.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Implementing mobile integrated health for adults with intellectual and developmental disabilities: a qualitative readiness assessment.Disability and health journal · 2026Article
- Cancer screening in people with intellectual disability: a scoping review of participation, barriers, facilitators, and improvement strategies within the EUCanScreen initiative.International journal for equity in health · 2026Article
- Improving the Safety and Quality of Care for Children and Young People With Intellectual and Developmental Disability. The Motivated for Change Programme in a Paediatric Emergency Department Setting. A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Barriers to Ophthalmologic Care Reported by Family Caregivers of Users and Non-Users With Intellectual Disabilities.Journal of intellectual disability research : JIDR · 2026Article
- Emergency Ambulance Healthcare for People With Intellectual Disabilities: A Scoping Review.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Article
- Improving the Quality of Care Coordination for Children and Young People with Intellectual Disability/Developmental Disorder in the Emergency Department Post CPD-QI Intervention (Motivated for Change Program).Children (Basel, Switzerland) · 2026Article
- Age-Specific Diagnostic Panorama Among People With Intellectual Disabilities in Comparison With the General Population: A Longitudinal Register Study (IDcare).Journal of intellectual disability research : JIDR · 2026Article
- Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Unmet healthcare needs of people with disabilities: evidence from the 2018-2021 Korean disability and life dynamics panel.BMC public health · 2025Article
- Factors influencing physical healthcare quality for people with intellectual disabilities: psychiatry multidisciplinary team perspective.BJPsych open · 2025Article
- Cost-Effectiveness of Alternative Treatment Strategies of Subretinal Macular Hemorrhage.Healthcare (Basel, Switzerland) · 2025Article
- Key Insights From a Rapid Review of Nondental Procedural Sedation Clinical Practice Guidelines for Adults With Intellectual and Developmental Disability.Journal of evidence-based medicine · 2025Article
- Article
- What I Wish I Had Known: Examining Parent Accounts of Managing the Health of Their Child With Intellectual Disability.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Effectiveness of a Disability Liaison Officer service in a metropolitan emergency department.Emergency medicine Australasia : EMA · 2025Article
- Exploring Connections Between Living Situations and Antipsychotic Prescribing Practices for People With Intellectual Disabilities.Psychiatric research and clinical practice · 2025Article
- Experiences, attitudes, and knowledge of medical students regarding intellectual and developmental disability: a Canadian study.BMC medical education · 2024Article
11 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with intellectual disability are at risk of poor hospital experiences and outcomes. The aims were to conduct a content and quality review of research into the acute hospital experiences of both people with intellectual disabilities and their carers, and to identify research gaps.
methodA systematic search was conducted of primary research between 2009 and 2013 that addressed the experiences of the target group in general acute care hospitals. Quality appraisal tools yielded scores for quantitative and qualitative studies, and overarching themes across studies were sought.
resultsSixteen studies met inclusion criteria. Quality scores were 6/8 for a survey, and 2/11-9/11 (mean =5.25) for qualitative studies/components. Content analysis revealed seven over-arching themes covering individuals' fear of hospital encounters, carer responsibilities, and problems with delivery of care in hospitals including staff knowledge, skills and attitudes.
conclusionsOur review of eligible papers revealed that despite 20 years of research and government initiatives, people with intellectual disability continue to have poor hospital experiences. The need for research to identify and investigate care at specific points of encounter across a hospital journey (such as admission, diagnostic testing, placement on a ward, and discharge) as well as to include people with a diversity of disabilities is discussed in terms of potential to influence policy and practice across health and disability sectors.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.