ArticleGenetics in medicine : official journal of the American College of Medical Genetics2015
Celebrity disclosures and information seeking: the case of Angelina Jolie.
Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 54 citations in OpenAlex.
- "Clicks, likes, shares and comments" a systematic review of breast cancer screening discourse in social media.PloS one · 2020Pooled it
- Patient and genetic counselor perceptions of in-person versus telephone genetic counseling for hereditary breast/ovarian cancer.Familial cancer · 2016Trial
- Effects of Public Disclosure of a Japanese Celebrity's Oral Cancer: Trends in Oral Cancer Diagnoses.Oral diseases · 2025Article
- Cancer awareness across borders: a comparative study of internet search trends for breast and prostate cancer in Europe and Turkey.BMC cancer · 2024Article
- Celebrities influence on rheumatic diseases interest: a Google Trends analysis.Rheumatology international · 2024Article
- Clinical Strategies in Gene Screening Counseling for the Healthy General Population.Korean journal of family medicine · 2024Article
- Attitudes towards and sociodemographic determinants of genetic test usage in the USA; data from the Health Information National Trend Survey, 2020.Journal of genetic counseling · 2023Article
- Insights and Strategies to Revive Brachytherapy Using Social Media: A Google Trends Analysis.Cureus · 2022Article
- YouTube as an information source on BRCA mutations: implications for patients and professionals.Journal of community genetics · 2022Article
- Using Search Engine Data to Explore Interest in PrEP and HIV Testing in the United States.AIDS and behavior · 2021Article
- Impact of Appointment Waiting Time on Attendance Rates at a Clinical Cancer Genetics Service.Journal of genetic counseling · 2018Article
- Trends in Use of Risk-Reducing Mastectomy in a Context of Celebrity Decisions and Media Coverage: An Observational Study in the United States and Australia.Health services research · 2018Observational
- Frequencies of Private Mentions and Sharing of Mammography and Breast Cancer Terms on Facebook: A Pilot Study.Journal of medical Internet research · 2017Article
- "I Don't Want to Be an Ostrich": Managing Mothers' Uncertainty during BRCA1/2 Genetic Counseling.Journal of genetic counseling · 2017Article
- Tracking the dissemination of a culturally targeted brochure to promote awareness of hereditary breast and ovarian cancer among Black women.Patient education and counseling · 2017Article
- The effect of a celebrity health disclosure on demand for health care: trends in BRCA testing and subsequent health services use.Journal of community genetics · 2017Article
- Do celebrity endorsements matter? Observational study of BRCA gene testing and mastectomy rates after Angelina Jolie's New York Times editorial.BMJ (Clinical research ed.) · 2016Observational
- Changes of Socio-demographic data of clients seeking genetic counseling for hereditary breast and ovarian cancer due to the "Angelina Jolie Effect".BMC cancer · 2016Article
- Why do people google movement disorders? An infodemiological study of information seeking behaviors.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2016Article
- Media Exposure and Genetic Literacy Skills to Evaluate Angelina Jolie's Decision for Prophylactic Mastectomy.Public health genomics · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
purposeOn 14 May 2013, actress Angelina Jolie disclosed that she had a BRCA1 mutation and underwent a prophylactic bilateral mastectomy. This study documents the impact of her disclosure on information-seeking behavior, specifically that regarding online genetics and risk reduction resources available from the National Cancer Institute.
methodsUsing Adobe Analytics, daily page views for 11 resources were tracked from 23 April 2013 through 25 June 2013. Usage data were also obtained for four resources over a 2-year period (2012-2013). Source of referral that viewers used to locate a specific resource was also examined.
resultsThere was a dramatic and immediate increase in traffic to the National Cancer Institute's online resources. The Preventive Mastectomy fact sheet received 69,225 page views on May 14, representing a 795-fold increase as compared with the previous Tuesday. A fivefold increase in page views was observed for the PDQ Genetics of Breast and Ovarian Cancer summary in the same time frame. A substantial increase, from 0 to 49%, was seen in referrals from news outlets to four resources from 7 May to 14 May.
conclusionCelebrity disclosures can dramatically influence online information-seeking behaviors. Efforts to capitalize on these disclosures to ensure easy access to accurate information are warranted.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.