ArticleJournal of the American Medical Informatics Association : JAMIA2015
Multi-source development of an integrated model for family health history.
Article in Journal of the American Medical Informatics Association : JAMIA, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Characterizing Autism Spectrum Disorder and Predicting Suicide Risk for Pediatric Psychiatric Emergency Services Encounters.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Article
- Determining Onset for Familial Breast and Colorectal Cancer from Family History Comments in the Electronic Health Record.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2019Article
- Representation of occupational information across resources and validation of the occupational data for health model.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Low Screening Rates for Diabetes Mellitus Among Family Members of Affected Relatives.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- Clinical Informatics Researcher's Desiderata for the Data Content of the Next Generation Electronic Health Record.Applied clinical informatics · 2017Article
- Systematic Analysis of Free-Text Family History in Electronic Health Record.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2017Article
- Analyzing Operative Note Structure in Development of a Section Header Resource.Studies in health technology and informatics · 2015Article
- An Assessment of Family History Information Captured in an Electronic Health Record.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2015Article
- Mining and Visualizing Family History Associations in the Electronic Health Record: A Case Study for Pediatric Asthma.AMIA ... Annual Symposium proceedings. AMIA SymposiumArticle
- Representation of Drug Use in Biomedical Standards, Clinical Text, and Research Measures.AMIA ... Annual Symposium proceedings. AMIA SymposiumArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectiveTo integrate data elements from multiple sources for informing comprehensive and standardized collection of family health history (FHH). MATERIALS AND
methodsThree types of sources were analyzed to identify data elements associated with the collection of FHH. First, clinical notes from multiple resources were annotated for FHH information. Second, questions and responses for family members in patient-facing FHH tools were examined. Lastly, elements defined in FHH-related specifications were extracted for several standards development and related organizations. Data elements identified from the notes, tools, and specifications were subsequently combined and compared.
resultsIn total, 891 notes from three resources, eight tools, and seven specifications associated with four organizations were analyzed. The resulting Integrated FHH Model consisted of 44 data elements for describing source of information, family members, observations, and general statements about family history. Of these elements, 16 were common to all three source types, 17 were common to two, and 11 were unique. Intra-source comparisons also revealed common and unique elements across the different notes, tools, and specifications. DISCUSSION: Through examination of multiple sources, a representative and complementary set of FHH data elements was identified. Further work is needed to create formal representations of the Integrated FHH Model, standardize values associated with each element, and inform context-specific implementations.
conclusionsThere has been increased emphasis on the importance of FHH for supporting personalized medicine, biomedical research, and population health. Multi-source development of an integrated model could contribute to improving the standardized collection and use of FHH information in disparate systems.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.