ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2015
Parental experiences of childhood cancer treatment in Kenya.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 53 citations in OpenAlex.
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Global Use of Traditional and Complementary Medicine in Childhood Cancer: A Systematic Review.Journal of global oncology · 2017Pooled it
- From Mechanisms to Manifestations: A Scoping Review Exploring Cancer-Related Discrimination.Psycho-oncology · 2026Article
- Article
- The implementation and strategy of triadic communication in pediatric oncology: a scoping review.Pediatric research · 2025Article
- Cancer health literacy in Kenya - A scoping review on evidence, concept and a situational analysis of interventions.Frontiers in public health · 2025Article
- The financial burden of noncommunicable diseases from out-of-pocket expenditure in sub-Saharan Africa: a scoping review.Health promotion international · 2024Article
- Self-Reported Late Effects in Childhood Cancer Survivors in Kenya.African health sciences · 2024Article
- Article
- The caregiver's experience of childhood cancer treatment in South Africa.Journal of pharmaceutical policy and practice · 2024Article
- Inter-Rater Reliability, Construct Validity, and Feasibility of the Modified "Which Health Approaches and Treatments Are You Using?" (WHAT) Questionnaires for Assessing the Use of Complementary Health Approaches in Pediatric Oncology.Children (Basel, Switzerland) · 2023Article
- An mHealth Intervention to Improve Guardians' Adherence to Children's Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study.JMIR research protocols · 2023Article
- Development and Adaptation of a Patient-Centered Communication Survey for Parents of Children With Cancer in Guatemala.JCO global oncology · 2022Article
- Religious and Spiritual Practices Used by Children and Adolescents to Cope with Cancer.Journal of religion and health · 2021Review
- Survivor and parent engagement in childhood cancer treatment in Iran.Ecancermedicalscience · 2021Article
- Social Inequalities Along the Childhood Cancer Continuum: An Overview of Evidence and a Conceptual Framework to Identify Underlying Mechanisms and Pathways.Frontiers in public health · 2019Review
- Family interactions in childhood leukemia: an exploratory descriptive study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
- Improving Access to Cancer Testing and Treatment in Kenya.Journal of global oncology · 2018Article
- Applying an Ethical Framework to Herbal Medicine.Evidence-based complementary and alternative medicine : eCAM · 2018Review
- The role of traditional healers in the diagnosis and management of Burkitt lymphoma in Cameroon: understanding the challenges and moving forward.BMC complementary and alternative medicine · 2017Article
Corrections and comments
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Authors and funding
10 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeOur study explores socioeconomic, treatment-related, and psychological experiences of parents during cancer treatment of their children at an academic hospital in Kenya.
methodsThis cross-sectional study used semi-structured questionnaires. Parents whose children came for cancer treatment consecutively between November 2012 and April 2013 were interviewed.
resultsBetween 2012 and 2013, 115 oncology patients attended the hospital and 75 families (response rate 65 %) were interviewed. Cancer treatment resulted in financial difficulties (89 %). More information about cancer and treatment was required (88 %). More contact with doctors was needed (83 %). At diagnosis, cancer was perceived as curable (63 %). However, parents were told by health-care providers that most children with cancer die (49 %). Parents had difficulties with understanding doctors' vocabulary (48 %). Common reasons to miss hospital appointments were travel costs (52 %) and hospital costs (28 %). Parents (95 %) used complementary alternative treatment (CAM) for their children. Health-care providers told parents not to use CAM (49 %). Parents had not discussed their CAM use with doctors (71 %). Community members isolated families because their child had cancer (25 %), believed that child was bewitched (57 %), advised to use CAM (61 %), and stopped conventional treatment (45 %). Some families (15 %) never disclosed the child's illness to community members. Parents shared experiences with other parents at the ward (97 %) and would otherwise not understand the disease and its treatment (87 %).
conclusionsParents suffer financial hardships and are dissatisfied with doctors' communication regarding their children's condition. CAM is very commonly used. Doctors need to improve their communication skills and discuss CAM more openly. Cancer programs should include more support for parents: financial assistance, a facility where parents and children can stay during the course of therapy, and parent support groups.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.