ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2015
What Black Women Know and Want to Know About Counseling and Testing for BRCA1/2.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Awareness, knowledge, perceptions, and attitudes towards genetic testing for cancer risk among ethnic minority groups: a systematic review.BMC public health · 2017Pooled it
- Web-based tool for cancer family history collection: A prospective randomized controlled trial.Gynecologic oncology · 2023Trial
- Patient Perceptions of Telephone vs. In-Person BRCA1/BRCA2 Genetic Counseling.Journal of genetic counseling · 2016Trial
- Breaking barriers to completing genetic testing for inherited breast cancer among at-risk Black women using a community-based participatory research approach.HGG advances · 2026Article
- Genomic testing in gamete donors: clinicians' perspectives on recontact and pre-donation genetic counseling.Journal of assisted reproduction and genetics · 2026Article
- Wikipedia as an academic service-learning tool in science and technology: higher education case from Siberia.Journal of community genetics · 2024Article
- Evaluation of disparities in perceived healthcare discrimination amongWomen & health · 2023Article
- What's in it for me?: A value assessment of gynecologic cancer clinical trials for Black women.Gynecologic oncology · 2023Article
- Communicating risk and the landscape of cancer prevention - an exploratory study that examines perceptions of cancer-related genetic counseling and testing among African Americans and Latinos in the Midwest.Journal of community genetics · 2023Article
- Inherited Cancer Knowledge Among Black Females with Breast Cancer Before and After Viewing a Web-Based Educational Video.Genetic testing and molecular biomarkers · 2023Article
- Women's thoughts on receiving and sharing genetic information: Considerations for genetic counseling.Journal of genetic counseling · 2022Article
- Genetic Evaluation for Hereditary Cancer Syndromes Among African Americans: A Critical Review.The oncologist · 2022Review
- The Role of Safety-Net Hospitals in Reducing Disparities in Breast Cancer Care.Annals of surgical oncology · 2022Review
- Impact of education on APOL1 testing attitudes among prospective living kidney donors.Clinical transplantation · 2022Article
- Genetic Testing for Cancer Risk: Is the Community Willing to Pay for It?International journal of environmental research and public health · 2021Article
- Knowledge and perceptions of BRCA1/2 genetic testing and needs of diverse women with a personal or family history of breast cancer in South Florida.Journal of community genetics · 2021Article
- A scoping review of social and behavioral science research to translate genomic discoveries into population health impact.Translational behavioral medicine · 2021Article
- Opinions of African American adults about the use of apolipoprotein L1 (ApoL1) genetic testing in living kidney donation and transplantation.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2021Article
- Challenges of Genomic Testing for Hereditary Breast and Ovarian Cancers.The application of clinical genetics · 2021Review
- Eliciting Willingness and Beliefs towards Participation in Genetic Psychiatric Testing in Black/African American Mothers at Risk for Depression.Behavioral sciences (Basel, Switzerland) · 2020Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
Black women are just as likely to have hereditary breast cancer mutations as White women, yet their participation in genetic counseling and testing is substantially lower. This study sought to describe Black women's awareness and perceptions of BRCA1/2 testing and to identify barriers and motivators to seeking BRCA1/2 services. Fifty intercept interviews were conducted with Black women in public places (a professional women's basketball game, a grocery store, a faith-based community event, and the waiting area at a breast care clinic) in Washington, DC. More than half of the women (54%) were aware that genetic tests to determine risk for certain breast and ovarian cancers exist, but the majority (88%) had never heard of BRCA1/2, specifically. After hearing a description of BRCA1/2 genetic markers, 82% stated that they would agree to BRCA1/2 testing if it was offered to them. Perceived advantages of testing included cancer prevention and the ability to share information with family members. Perceived disadvantages included emotional distress associated with identification of the mutation and the potential misuse of results to deny healthcare or employment. Physician recommendation, self-care, and known family history were among the motivators for testing. Women listed possible media and venues for intervention. In spite of low rates of BRCA1/2 testing in the Black community, women in this sample were open to the idea. Interventions that address barriers and include cultural tailoring are necessary.
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