ReviewPediatrics2014
Transition care for children with special health care needs.
Review in Pediatrics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03298685 (SAFETIM Besoins), which is not on this map. Cited by 49 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
SAFETIM Besoins: Suivi Des Adolescents Des Familles et Des Equipes Pour Une Transition Idéale en Mucoviscidose Etude Des Besoins Adolescents et Parent Avant après Transition
Who cites it
49 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Case Management for Enhancing Wellbeing, Resilience, and Quality of Life in Caregivers of Children and Adolescents With Chronic Illnesses and Disabilities: A Systematic Review and Meta-Analysis.Nursing & health sciences · 2025Pooled it
- Pooled it
- Greater number of perceived barriers to hydroxyurea associated with poorer health-related quality of life in youth with sickle cell disease.Pediatric blood & cancer · 2019Trial
- Evaluating special education services for children with disabilities at Prince Sultan Military Medical City, Riyadh: A retrospective study (2022-2023).Journal of family medicine and primary care · 2026Article
- A novel score for transition success of pediatric rheumatology patients.Health care transitions · 2026Article
- Rehabilitation needs and healthcare utilization of adults with cerebral palsy: A mixed methods study.Journal of pediatric rehabilitation medicine · 2025Article
- Article
- Prevalence, trends, and specialized palliative care utilization in Taiwanese children and young adults with life-limiting conditions between 2008 and 2017: a nationwide population-based study.Archives of public health = Archives belges de sante publique · 2024Article
- "An urgent need for transition of care programs for adolescents and young adults with neurogastroenterology and motility disorders".Journal of pediatric gastroenterology and nutrition · 2024Article
- Transition services in mental health - A suitable solution for young patients? A qualitative study of the opinions of adolescent and adult psychiatrists in Portugal.Health care transitions · 2024Article
- Development of a multi-level/multi-modal intervention for health care transition preparation.Health care transitions · 2024Article
- Creating a data collection and management platform to support measurement of adolescent HIV care transition processes within low- and middle-income countries: The GRADUATE project.PLOS global public health · 2024Article
- Transition readiness in middle and older adolescents with asthma and associated factors: a descriptive study.The Journal of asthma : official journal of the Association for the Care of Asthma · 2023Article
- Knowledge, Attitudes, and Practices of Allergists/Immunologists Regarding Transition of Care for Primary Immunodeficiency Patients.Journal of clinical immunology · 2023Article
- Transition readiness of adolescents to adult health care.Frontiers in pediatrics · 2023Article
- Health Care Transition to Adult Care in Type 1 Diabetes: Associations With Student and Employment Status-The SEARCH for Diabetes in Youth Study.Clinical diabetes : a publication of the American Diabetes Association · 2023Article
- Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study.Children (Basel, Switzerland) · 2022Article
- Congenital Adrenal Hyperplasia-Current Insights in Pathophysiology, Diagnostics, and Management.Endocrine reviews · 2022Review
- Article
- Down Syndrome Children, Malocclusion Characteristics and the Need for Orthodontic Treatment Needs (IOTN): A Cross-Sectional Study.Children (Basel, Switzerland) · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundApproximately 750,000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care.
methodsWe had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs.
resultsWe identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials.
conclusionsThe issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.