ArticleMayo Clinic proceedings2014
Practical guidance on informed consent for pediatric participants in a biorepository.
Abstract read
In one paragraph
Article in Mayo Clinic proceedings, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed
–field-weighted citation impact
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Bioethics and medical oversight in multi-site observational neuroimaging studies with children and adolescents: 10 years of ABCD experience.Developmental cognitive neuroscience · 2026Article
- Ethical guidelines for human research on children and adolescents: A narrative review study.Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences · 2024Review
- Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research.Journal of adolescent and young adult oncology · 2023Article
- Reconsenting paediatric research participants for use of identifying data.Journal of medical ethics · 2023Article
- Open Science Within Pediatric Medical and Mental Health Systems: Practical Considerations for Behavioral Health Researchers.Frontiers in psychology · 2022Article
- Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues.Frontiers in medicine · 2021Review
- Rethinking the "open future" argument against predictive genetic testing of children.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- Model consent clauses for rare disease research.BMC medical ethics · 2019Article
- Anticipatory Waivers of Consent for Pediatric Biobanking.Ethics & human research · 2019Article
- Biobanking in the Pediatric Critical Care Setting: Adolescent/Young Adult Perspectives.Journal of empirical research on human research ethics : JERHRE · 2018Article
- Article
- Reconsidering the Need for Reconsent at 18.Pediatrics · 2018Review
- Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2018Article
- Ethical Considerations Related to Return of Results from Genomic Medicine Projects: The eMERGE Network (Phase III) Experience.Journal of personalized medicine · 2018Article
- Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.American journal of human genetics · 2016Article
- When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.The Journal of pediatrics · 2016Article
- Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents.The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Kyle B BrothersDepartment of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
John A LynchDepartment of Communication, University of Cincinnati, Cincinnati, OH.
Sharon A AufoxCenter for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.
John J ConnollyCenter for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.
Bruce D GelbMindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY.
Ingrid A HolmDivision of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, and Harvard Medical School, Boston, MA.
Saskia C SandersonDepartment of Genetic and Genomics Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
Jennifer B McCormickDivisions of General Internal Medicine and Health Care and Policy Research and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
Janet L WilliamsGenomic Medicine Institute, Geisinger Health System, Danville, PA.
Wendy A WolfDivision of Genetics and Genomics, Boston Children's Hospital, Boston, MA.
Armand H M AntommariaEthics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
Ellen W ClaytonCenter for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
Funding
The Mount Sinai Transdisciplinary Center on Early Environmental ExposuresP30ES023515 · NIEHS · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI Manish Arora · 2014 to 2026
$21.3MGenomic Basis of Susceptibility to COVID-19 Infection and its ComplicationsU01HG006379 · NHGRI · MAYO CLINIC ROCHESTER · PI Richard R. Sharp · 2011 to 2026
$16.5MeMERGE Coordinating Center - Administrative SupplementU01HG006385 · NHGRI · VANDERBILT UNIVERSITY · PI HARRIS, PAUL A. · 2011 to 2014
$5.4MBiorepository for Genomic Medicine in diverse CommunitiesU01HG006380 · NHGRI · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI BOTTINGER, ERWIN P. · 2011 to 2015
$4.5MGeisinger eGenonic Medicine (GeM) ProgramU01HG006382 · NHGRI · GEISINGER CLINIC · PI CAREY, DAVID J., WILLIAMS, MARC S. · 2011 to 2014
$4.3MA Personalized Genomic Medicine Pilot Program Using the NJgene eMERGE ExperienceU01HG006388 · NHGRI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CHISHOLM, REX L, SMITH, MAUREEN E · 2011 to 2014
$4.1MIRIS: Incorporating Research Into SightU01HG006389 · NHGRI · ESSENTIA INSTITUTE OF RURAL HEALTH · PI MCCARTY, CATHERINE ANNE · 2011 to 2014
$4.1MGenetic Discovery and Application in a Clinical Setting Continuing a PartnershipU01HG006375 · NHGRI · KAISER FOUNDATION HEALTH PLAN OF WASHINGTON · PI JARVIK, GAIL PAIRITZ, LARSON, ERIC B · 2011 to 2014
$4.1MVanderbilt Genome Electronic Records ProjectU01HG006378 · NHGRI · VANDERBILT UNIVERSITY · PI RODEN, DAN M · 2011 to 2014
$4.0MBetter Outcomes for Children: GWAS & PheWAS in eMERGEII.U01HG006828 · NHGRI · CINCINNATI CHILDRENS HOSP MED CTR · PI HARLEY, JOHN BARKER, HOLM, INGRID ADELE · 2012 to 2014
$4.0MIntegrative Analysis of a GWAS Repository with EMRs from over 40,000 ChildrenU01HG006830 · NHGRI · CHILDREN'S HOSP OF PHILADELPHIA · PI HAKONARSON, HAKON · 2012 to 2014
$3.7MNHGRI NIH HHS U01 HG006375NHGRI NIH HHS U01HG006375NHGRI NIH HHS U01 HG006378NHGRI NIH HHS U01HG006378NHGRI NIH HHS U01 HG006379NHGRI NIH HHS U01HG006379NHGRI NIH HHS U01 HG006380NHGRI NIH HHS U01HG006380NHGRI NIH HHS U01 HG006382NHGRI NIH HHS U01HG006382NHGRI NIH HHS U01 HG006385NHGRI NIH HHS U01HG006385NHGRI NIH HHS U01 HG006388NHGRI NIH HHS U01HG006388NHGRI NIH HHS U01 HG006389NHGRI NIH HHS U01HG006389NHGRI NIH HHS U01 HG006828NHGRI NIH HHS U01HG006828NHGRI NIH HHS U01 HG006830NHGRI NIH HHS U01HG006830NIEHS NIH HHS P30 ES023515
Abstract
PubMed holds no abstract for this paper.
Indexed as
AdolescentBiological Specimen BanksChildChild WelfareGenetic ResearchGuidelines as TopicHumansInformed ConsentNational Human Genome Research Institute (U.S.)Parental ConsentSpecimen HandlingUnited States
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.