ArticleBMJ open2014
'Beats the alternative but it messes up your life': aboriginal people's experience of haemodialysis in rural Australia.
Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 6 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
20 citing papers in PubMed, 6 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Perspectives of Indigenous Peoples on Home Dialysis: A Systematic Review and Meta-Synthesis of Qualitative Studies.Clinical journal of the American Society of Nephrology : CJASN · 2026Pooled it
- Reported sources of health inequities in Indigenous Peoples with chronic kidney disease: a systematic review of quantitative studies.BMC public health · 2021Pooled it
- Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences.International journal for equity in health · 2020Pooled it
- Pooled it
- Work of being an adult patient with chronic kidney disease: a systematic review of qualitative studies.BMJ open · 2018Pooled it
- Effectiveness, cost effectiveness, acceptability and implementation barriers/enablers of chronic kidney disease management programs for Indigenous people in Australia, New Zealand and Canada: a systematic review of mixed evidence.BMC health services research · 2016Pooled it
- The stay strong app as a self-management tool for first nations people with chronic kidney disease: a qualitative study.BMC nephrology · 2022Trial
- Indigenous Culture and Health in UDRH Research: An Indigenous-Led Narrative Review.The Australian journal of rural health · 2026Review
- Cultural Education Provided to Renal Staff Caring for First Nations People in Australia and Similarly Colonized Countries: A Scoping Review.Journal of renal care · 2025Article
- Cost-Effectiveness of Clinical Decision Support to Improve CKD Outcomes Among First Nations Australians.Kidney international reports · 2025Article
- The Construction of British Columbia's Palliative Care Benefits Policy and Implications for Nursing Practice.Policy, politics & nursing practice · 2025Article
- A qualitative exploration of the patient journey in axial spondyloarthritis towards a people-centered understanding.Scientific reports · 2024Article
- Factors affecting access to dialysis for patients with end-stage kidney disease in Sub-Saharan Africa: A scoping review.Nursing open · 2023Article
- Reporting and conducting patient journey mapping research in healthcare: A scoping review.Journal of advanced nursing · 2023Article
- Decolonising qualitative research with respectful, reciprocal, and responsible research practice: a narrative review of the application of Yarning method in qualitative Aboriginal and Torres Strait Islander health research.International journal for equity in health · 2022Review
- Dialysis attendance patterns and health care utilisation of Aboriginal patients attending dialysis services in urban, rural and remote locations.BMC health services research · 2022Article
- What Matters 2 Adults: a study protocol to develop a new preference-based wellbeing measure with Aboriginal and Torres Strait Islander adults (WM2Adults).BMC public health · 2020Article
- Cultural safety strategies for rural Indigenous palliative care: a scoping review.BMC palliative care · 2019Article
- Difficult conversations: Australian Indigenous patients' views on kidney transplantation.BMC nephrology · 2017Article
- The barriers and facilitators that indigenous health workers experience in their workplace and communities in providing self-management support: a multiple case study.BMC health services research · 2017Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesAustralian Aboriginal people have at least eight times the incidence of end-stage kidney disease, requiring dialysis, as the non-Aboriginal population. Provision of health services to rural Aboriginal people with renal disease is challenging due to barriers to access and cultural differences. We aimed to describe the experiences of Aboriginal people receiving haemodialysis in rural Australia, to inform strategies for improving renal services.
designA qualitative design incorporating: Indigenist research methodology and Community Based Participatory Research principles. In-depth interviews used a 'yarning' and storytelling approach. Thematic analysis was undertaken and verified by an Aboriginal Community Reference Group.
settingA health district in rural New South Wales, Australia.
participantsSnowball sampling recruited 18 Aboriginal haemodialysis recipients.
resultsSix themes emerged which described the patient journey: 'The biggest shock of me life,' expressed the shock of diagnosis and starting the dialysis; 'Beats the alternative but it messes up your life,' explained how positive attitudes to treatment develop; 'Family is everything', described the motivation and support to continue dialysis; 'If I had one of them nurses at home to help me', depicted acute hospital settings as culturally unsafe; 'Don't use them big jawbreakers', urged service providers to use simple language and cultural awareness; 'Stop 'em following us onto the machine', emphasised the desire for education for the younger generations about preventing kidney disease. An Aboriginal interpretation of this experience, linked to the analysis, was depicted in the form of an Aboriginal painting.
conclusionsFamily enables Aboriginal people to endure haemodialysis. Patients believe that priorities for improving services include family-centred and culturally accommodating healthcare systems; and improving access to early screening of kidney disease. Inclusion of Aboriginal patients in cultural education for renal staff is recommended. Providing opportunities for patients to educate young Aboriginal people about kidney disease prevention may be highly effective and empowering.
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