ReviewCurrent psychiatry reports2014
Privacy in the digital world: medical and health data outside of HIPAA protections.
Review in Current psychiatry reports, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
47 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The use of chatbots as interventions for mental health conditions: scoping review of systematic reviews and meta-analyses.Frontiers in digital health · 2026Pooled it
- Experiences of mobile health in promoting physical activity: A qualitative systematic review and meta-ethnography.PloS one · 2018Pooled it
- Evidence of unreliable data and poor data provenance in clinical prediction model research and clinical practice.BMC medicine · 2026Article
- Integrating Sensory Perception and Wearable Monitoring to Promote Healthy Aging: A New Frontier in Nutritional Personalization.Nutrients · 2026Review
- Navigating the new frontier: technical, humanistic, and ethical skills in AI-augmented stroke care for vascular neurologists: a scoping review.Einstein (Sao Paulo, Brazil) · 2026Article
- Exploring the Frontiers of Technology in Forensic Psychiatric Youth Care: Ethical Challenges.Research on child and adolescent psychopathology · 2025Review
- Patterns of willingness to share health data with key stakeholders in US consumers: a latent class analysis.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- Psychotherapy 2.0 - Application context and effectiveness of sensor technology in psychotherapy with children and adolescents: A systematic review.Internet interventions · 2024Review
- Medical Information Protection in Internet Hospital Apps in China: Scale Development and Content Analysis.JMIR mHealth and uHealth · 2024Article
- Cardiovascular Care Innovation through Data-Driven Discoveries in the Electronic Health Record.The American journal of cardiology · 2023Review
- The impact of commercial health datasets on medical research and health-care algorithms.The Lancet. Digital health · 2023Review
- Forensic Psychiatric Outpatients' and Therapists' Perspectives on a Wearable Biocueing App (Sense-IT) as an Addition to Aggression Regulation Therapy: Qualitative Focus Group and Interview Study.JMIR formative research · 2023Article
- Your robot therapist is not your therapist: understanding the role of AI-powered mental health chatbots.Frontiers in digital health · 2023Article
- Commentaries on Viewpoint: Hoping for the best, prepared for the worst: can we perform remote data collection in sport sciences?Journal of applied physiology (Bethesda, Md. : 1985) · 2022Article
- A Survey of Research Participants' Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers.Journal of personalized medicine · 2022Article
- Separating Features From Functionality in Vaccination Apps: Computational Analysis.JMIR formative research · 2022Article
- Ethical Issues of Digital Twins for Personalized Health Care Service: Preliminary Mapping Study.Journal of medical Internet research · 2022Article
- Article
- Health Information Privacy Laws in the Digital Age: HIPAA Doesn't Apply.Perspectives in health information managemen · 2021Article
- Self-assessment of patterns of subjective experience: development and psychometric study of the States of Mind Questionnaire.Research in psychotherapy (Milano) · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Increasing quantities of medical and health data are being created outside of HIPAA protection, primarily by patients. Data sources are varied, including the use of credit cards for physician visit and medication co-pays, Internet searches, email content, social media, support groups, and mobile health apps. Most medical and health data not covered by HIPAA are controlled by third party data brokers and Internet companies. These companies combine this data with a wide range of personal information about consumer daily activities, transactions, movements, and demographics. The combined data are used for predictive profiling of individual health status, and often sold for advertising and other purposes. The rapid expansion of medical and health data outside of HIPAA protection is encroaching on privacy and the doctor-patient relationship, and is of particular concern for psychiatry. Detailed discussion of the appropriate handling of this medical and health data is needed by individuals with a wide variety of expertise.
Indexed as
Identifiers
25218603What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.