ArticleJournal of pediatric gastroenterology and nutrition2015
Transition readiness in pediatric patients with inflammatory bowel disease: patient survey of self-management skills.
Article in Journal of pediatric gastroenterology and nutrition, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 61 citations in OpenAlex.
- Pediatric to Adult Transition in Inflammatory Bowel Disease: Consensus Guidelines for Australia and New Zealand.Inflammatory bowel diseases · 2025Guideline
- A Systematic Review of Transition Readiness in Youth with Chronic Disease.Western journal of nursing research · 2020Pooled it
- Impact of age at diagnosis on college adjustment in students with inflammatory bowel disease.JPGN reports · 2025Article
- A Smooth Transition: Assessing Transition Readiness in Adolescents with Inflammatory Bowel Disease.Digestive diseases and sciences · 2024Article
- Transitional care of adolescents with inflammatory bowel disease to adult services varies widely across Australia and New Zealand.JGH open : an open access journal of gastroenterology and hepatology · 2024Article
- Transition Readiness Into Adult Health Care in Children With Inflammatory Bowel Disease.Cureus · 2023Article
- Improving the use of transition readiness measures in research and clinical care.Pediatric research · 2023Review
- Editorial: Exploring the interplay between clinical and non-clinical outcomes for children and adults with inflammatory bowel disease.Frontiers in gastroenterology (Lausanne, Switzerland) · 2023Article
- A web-based survey on self-management for patients with inflammatory bowel disease in Japan.PloS one · 2023Article
- Transition of Chronic Pediatric Nephrological Patients to Adult Care Excluding Patients on Renal Replacement Therapy with Literature Review.Children (Basel, Switzerland) · 2022Article
- Canadian Consensus Statements on the Transition of Adolescents and Young Adults with Inflammatory Bowel Disease from Pediatric to Adult Care: A Collaborative Initiative Between the Canadian IBD Transition Network and Crohn's and Colitis Canada.Journal of the Canadian Association of Gastroenterology · 2022Article
- Promoting High-Quality Health Communication Between Young Adults With Diabetes and Health Care Providers.Diabetes spectrum : a publication of the American Diabetes Association · 2021Article
- Systematic Review of Self-Management Assessment Tools for Children With Inflammatory Bowel Disease.JPGN reports · 2021Review
- The evolution of IBD perceived engagement and care needs across the life-cycle: a scoping review.BMC gastroenterology · 2021Article
- Transition Readiness Not Associated With Measures of Health in Youth With IBD.Inflammatory bowel diseases · 2021Article
- Self-efficacy did not predict the outcome of the transition to adult care in adolescents with inflammatory bowel disease.Acta paediatrica (Oslo, Norway : 1992) · 2019Article
- Initial Development and Validation of a Transition Readiness Scale for Adolescents with Inflammatory Bowel Disease.Gastroenterology research and practice · 2019Article
- Monitoring adolescents and young people with inflammatory bowel disease during transition to adult healthcare.Frontline gastroenterology · 2018Review
- Health Communication Experiences of Emerging Adults with Type 1 Diabetes.Clinical practice in pediatric psychology · 2017Article
- Helping Health Services to Meet the Needs of Young People with Chronic Conditions: Towards a Developmental Model for Transition.Healthcare (Basel, Switzerland) · 2017Review
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
objectiveTransition may be associated with poor health outcomes, but limited data exist regarding inflammatory bowel disease (IBD). Acquisition of self-management skills is believed to be important to this process. IBD-specific checklists of such skills have been developed to aid in transition, but none has been well studied or validated. This study aimed to describe self-assessment ability to perform tasks on one of these checklists and to explore the relation between patient age and disease duration.
methodsPatients ages 10 to 21 years with IBD were recruited. An iPad survey queried the patients for self-assessment of ability to perform specific self-management tasks. Task categories included basic knowledge of IBD, doctor visits, medications and other treatments, and disease management. Associations with age and disease duration were tested with Spearman rank correlation.
resultsA total of 67 patients (31 boys) with Crohn disease (n = 40), ulcerative colitis (n = 25), and indeterminate colitis (n = 2) participated in the study. Mean patient age was 15.8 ± 2.5 years, with median disease duration of 5 years (2 months-14 years). The proportion of patients who self-reported ability to complete a task without help increased with age for most tasks, including "telling others my diagnosis" (ρ = 0.43, P = 0.003), "telling medical staff I do not like or am having trouble following a treatment" (ρ = 0.37, P = 0.003), and "naming my medications" (ρ = 0.28, P = 0.02). No task significantly improved with disease duration.
conclusionsSelf-assessment of ability to perform some key tasks of transition appears to improve with age, but not with disease duration. More important, communication with the medical team did not improve with age, despite being of critical importance to functioning within an adult care model.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.