ArticleHealth expectations : an international journal of public participation in health care and health policy2016
Communicating with disabled children when inpatients: barriers and facilitators identified by parents and professionals in a qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Views and Experiences of Families and Registered Nurses Regarding Hospital Care and Support of Children With Intellectual Disabilities: A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2026Pooled it
- Young people with disabilities and their sexual health: a descriptive review of needs, recommendations and interventions.BMC public health · 2025Pooled it
- Article
- Patient education involving children and their parents or caregivers: a qualitative study among nurses in Northern Ghana.BMC medical education · 2026Article
- Impact of sensory training on healthcare provider care for neurodivergent children.Frontiers in pediatrics · 2026Article
- Parents' experiences of their child's best interests during a hospital stay in Australia.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- Nurses and the disabled child's perspective in the anaesthesia procedure preparation process using a picture schedule.International journal of qualitative studies on health and well-being · 2024Observational
- Medical student program to learn from families experiencing developmental disabilities.International journal of developmental disabilities · 2024Article
- Parental experiences of caring for children who have learning disabilities and procedural anxiety in hospital: An interpretive phenomenological study.Child: care, health and development · 2022Article
- Support staff liaising effectively with professionals for the rational use of psychotropics for behaviours that challenge in adults with intellectual disabilities: Findings from a co-design event.Frontiers in psychiatry · 2022Article
- Implementation of training to improve communication with disabled children on the ward: A feasibility study.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Child-Parent-Provider Interactions of a Child With Complex Communication Needs in an Inpatient Rehabilitation Facility: A Pilot Study.American journal of speech-language pathology · 2021Article
- Children's rights as law in Sweden-every health-care encounter needs to meet the child's needs.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Partnerships for safe care: A meta-narrative of the experience for the parent of a child with Intellectual Disability in hospital.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- Utilization of a Novel Pathway in a Tertiary Pediatric Hospital to Meet the Sensory Needs of Acutely Ill Pediatric Patients.Frontiers in pediatrics · 2019Article
- Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.BMC health services research · 2018Article
- Improving communication between staff and disabled children in hospital wards: testing the feasibility of a training intervention developed through intervention mapping.BMJ paediatrics open · 2017Article
- Article
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCommunication is a fundamental part of health care, but can be more difficult with disabled children. Disabled children are more frequently admitted to hospital than other children.
aimsTo explore experiences of ward staff and families to identify barriers and facilitators to effective communication with disabled children whilst inpatients.
designThis was an exploratory qualitative study.
methodsWe consulted 25 staff working on paediatric wards and 15 parents of disabled children recently admitted to those wards. We had difficulty in recruiting children and evaluating their experiences. Data were collected through interviews and focus groups. A thematic analysis of the data supported by the Framework Approach was used to explore experiences and views about communication. Emerging themes were subsequently synthesised to identify barriers and facilitators to good communication.
resultsBarriers to communication included time, professionals not prioritising communication in their role and poor information sharing between parents and professionals. Facilitators included professionals building rapport with a child, good relationships between professionals and parents, professionals having a family-centred approach, and the use of communication aids.
conclusionsCommunication with disabled children on the ward was perceived as less than optimal. Parents are instrumental in the communication between their children and professionals. Although aware of the importance of communication with disabled children, staff perceived time pressures and lack of priority given to communicating directly with the child as major barriers.
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