ArticleJournal of community genetics2015
To worry or not to worry: breast cancer genetic counseling communication with low-income Latina immigrants.
Article in Journal of community genetics, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Comparison of 3 Modes of Genetic Counseling in High-Risk Public Hospital
Testing a Culturally Adapted Telephone Genetic Counseling Intervention to Enhance Genetic Risk Assessment in Underserved Latinas at Risk of Hereditary Breast and Ovarian Cancer
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.
- Latinx attitudes, barriers, and experiences with genetic counseling and testing: A systematic review.Journal of genetic counseling · 2023Pooled it
- "Es Lindo, Pero Estamos Perdidos"-Characterizing Facilitators and Barriers to Clinical Genetic Testing for Latino Populations.Journal of racial and ethnic health disparities · 2026Article
- Factors affecting genetic counseling experiences of foreign residents in Japan: implications for healthcare inclusivity.Journal of community genetics · 2025Article
- Genetic counselling resources in non-english languages: A scoping review.PEC innovation · 2023Article
- Piloting a Spanish-Language Web-Based Tool for Hereditary Cancer Genetic Testing.Current oncology (Toronto, Ont.) · 2023Article
- Medical interpreter-mediated genetic counseling for Spanish preferring adults at risk for a hereditary cancer syndrome.Journal of genetic counseling · 2023Article
- Exploring United States genetic counselor and healthcare interpreter perspectives: Allocation of roles within the genetic counseling encounter.Journal of genetic counseling · 2022Article
- Research to reduce inequities in cancer risk services: Insights for remote genetic counseling in a pandemic and beyond.Journal of genetic counseling · 2021Article
- Adapting genetic counseling operations amidst the COVID-19 pandemic.Journal of genetic counseling · 2021Article
- Where culture meets genetics: Exploring Latina immigrants' lay beliefs of disease inheritance.Social science & medicine (1982) · 2021Article
- Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing.Breast cancer research and treatment · 2020Article
- Genetic Counseling and the Central Tenets of Practice.Cold Spring Harbor perspectives in medicine · 2020Review
- Developing a culturally targeted video to enhance the use of genetic counseling in Latina women at increased risk for hereditary breast and ovarian cancer.Journal of community genetics · 2020Article
- Inequities in genetic testing for hereditary breast cancer: implications for public health practice.Journal of community genetics · 2019Review
- Provider's Perceptions of Barriers and Facilitators for Latinas to Participate in Genetic Cancer Risk Assessment for Hereditary Breast and Ovarian Cancer.Healthcare (Basel, Switzerland) · 2018Article
- A comparison of cancer risk assessment and testing outcomes in patients from underserved vs. tertiary care settings.Journal of community genetics · 2018Article
- Cancer genetic counseling communication with low-income Chinese immigrants.Journal of community genetics · 2018Article
- Cancer Counseling of Low-Income Limited English Proficient Latina Women Using Medical Interpreters: Implications for Shared Decision-Making.Journal of genetic counseling · 2018Article
- Working with the Hmong Population in a Genetics Setting: Genetic Counselor Perspectives.Journal of genetic counseling · 2017Article
- Portero versus portador: Spanish interpretation of genomic terminology during whole exome sequencing results disclosure.Personalized medicine · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
The purpose of this pilot study was to describe communication practices during hereditary breast cancer genetic counseling (GC) with low-income immigrant Latina patients in a public hospital setting. We utilized qualitative ethnographic methods, including direct observation of GC appointments with Latina patients at a public hospital offering free GC and BRCA testing and in-depth qualitative interviews with patients after they had received their BRCA genetic test results. Twenty-five patients participated; 20 were observed during genetic counseling appointments, and ten participated in interviews after BRCA testing with six participating in both observations and an interview. Analyses of qualitative data from observation field notes and interviews identified both strengths and limitations of current communication practices within the following themes: (1) family health history communication, (2) education regarding genes and genetics and patient information needs, (3) the purpose of the genetic test, (4) genetic test results and cancer risk, (5) building rapport and providing support, and (6) medical interpretation for monolingual Spanish speakers. As access to cancer GC expands in the public safety net settings and for the diverse populations they serve, it is critical to ensure effective communication in order for patients, whether or not they have a BRCA mutation, to understand the nature of their cancer risk and recommended methods of screening and prevention. Intervention strategies that address both structural constraints and patient-provider communication are needed to improve GC communication with immigrant Latinas, especially monolingual Spanish speakers.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.