SynthesisHealth expectations : an international journal of public participation in health care and health policy2015
Information and decision-making needs among people with mental disorders: a systematic review of the literature.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 41 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
41 citing papers in PubMed, 3 syntheses or guidelines pooled it, 81 citations in OpenAlex.
- Antidepressant and antipsychotic side-effects and personalised prescribing: a systematic review and digital tool development.The lancet. Psychiatry · 2023Pooled it
- A Systematic Review of Shared Decision-Making Interventions for Service Users With Serious Mental Illnesses: State of the Science and Future Directions.Psychiatric services (Washington, D.C.) · 2021Pooled it
- Shared Decision-Making: a Systematic Review Focusing on Mood Disorders.Current psychiatry reports · 2018Pooled it
- Effectiveness of a web-based decision aid for patients with Generalised Anxiety Disorder in Spain: a randomised controlled trial.BMJ health & care informatics · 2025Trial
- Case Study Analysis of a Decision Coaching Intervention for Young Adults with Early Psychosis.Community mental health journal · 2025Trial
- A Brief Web-Based Person-Centered Care Group Training Program for the Management of Generalized Anxiety Disorder: Feasibility Randomized Controlled Trial in Spain.JMIR medical education · 2025Trial
- The LIFE-ACE Framework of Building Therapeutic Relationships that Support Recovery in Japanese Community Mental Health: A Qualitative Study.Community mental health journal · 2026Article
- Parental engagement in an early intervention program for anorexia nervosa: a qualitative study.European child & adolescent psychiatry · 2026Article
- Patient-Centred Preferences for Autonomy and Information-Seeking Among Periodontal Patients in Dental Decision Making.Journal of clinical periodontology · 2025Article
- Users remain overlooked: Shared decision-making processes for people with anxiety disorders.Journal of psychiatric and mental health nursing · 2025Article
- Mental health care and pragmatic shared decision making in general practice: an interview study.BJGP open · 2025Article
- Path Analysis of Health Literacy, Social Support, and Self-Efficacy on Decisional Conflict in Patients with Stable Schizophrenia.Neuropsychiatric disease and treatment · 2024Article
- What to take up from the patient's talk? The clinician's responses to the patient's self-disclosure of their subjective experience in the psychiatric intake interview.Frontiers in psychiatry · 2024Article
- Experiencing (Shared) Decision Making: Results from a Qualitative Study of People with Mental Illness and Their Family Members.Healthcare (Basel, Switzerland) · 2023Article
- Peer-Facilitated Decision Making in Mental Health: Promises, Pitfalls, and Recommendations for Research and Practice.Psychiatric services (Washington, D.C.) · 2023Article
- Guidelines to Establish an Equitable Mobile Health Ecosystem.Psychiatric services (Washington, D.C.) · 2023Article
- Development of the PREMIUM Computerized Adaptive Testing for Measuring the Quality of Information Delivered to Patients with Severe Mental Illnesses.Journal of clinical medicine · 2022Article
- Optimized Informed Consent for Psychotherapy: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2022Article
- Information needs and sources of information among people with depression and anxiety: a scoping review.BMC psychiatry · 2022Article
- Examining Anxiety Treatment Information Needs: Web-Based Survey Study.JMIR formative research · 2022Article
Corrections and comments
- Erratum issuedErratum.2019
Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAssessment of users' information and decision-making needs is one key step in the development of decision-support interventions.
objectiveTo identify patients' information and decision-making needs as a pre-requisite for the development of high-quality web-based patient decision aids (PtDAs) for common mental disorders. SEARCH STRATEGY: A systematic MEDLINE search for papers published until December 2012 was conducted, and reference lists of included articles and relevant reviews were searched. INCLUSION CRITERIA: Original studies containing data on information or decision-making needs of adults with depression, anxiety disorders, somatoform disorders, alcohol-related disorders and schizophrenia were included. DATA EXTRACTION AND SYNTHESIS: Data extraction was performed using a standardized form, and data synthesis was conducted using a theory-based deductive approach by two independent reviewers. Studies were quality assessed using the Mixed Methods Appraisal Tool. MAIN
resultsTwelve studies were included focusing on information needs or the identification of decisions patients with depression and schizophrenia were facing. No studies were found for the other mental disorders. Overall, seven information needs categories were identified with the topics 'basic facts', 'treatment' and 'coping' being of major relevance. Six decision categories were identified of which decisions on 'medication' and 'treatment setting' were most often classified.
conclusionsThis review reveals that patients with schizophrenia and depression show extensive information and decision-making needs. The identified needs can initially inform the design of PtDAs for schizophrenia and depression. However, there is an urgent need to investigate information and decision-making needs among patients with other mental disorders.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.