ArticleFamilies, systems & health : the journal of collaborative family healthcare2008
Disclosure of Positive
Article in Families, systems & health : the journal of collaborative family healthcare, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 47 citations in OpenAlex.
- Family Communication, Risk Perception and Cancer Knowledge of Young Adults from BRCA1/2 Families: a Systematic Review.Journal of genetic counseling · 2017Pooled it
- Navigating disclosure in new romantic partnerships as an adolescent or young adult with Li-Fraumeni syndrome.Familial cancer · 2025Article
- Intimate partners' participation in risk-management decision making by women at elevated risk of breast cancer: An exploratory qualitative study.SSM. Qualitative research in health · 2025Article
- Understanding genetic variations associated with familial breast cancer.World journal of surgical oncology · 2024Review
- Disclosure of genetic risk to dating partners among young adults with von Hippel-Lindau disease.Familial cancer · 2023Article
- What do women at high risk of breast cancer request of a patient education day? Focus interviews with women before and after deciding about prophylactic interventions.European journal of cancer care · 2022Article
- Review
- Intrafamilial communication of hereditary breast and ovarian cancer genetic information in Italian women: towards a personalised approach.European journal of human genetics : EJHG · 2021Article
- Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions.Journal of family nursing · 2019Article
- "It was an Emotional Baby": Previvors' Family Planning Decision-Making Styles about Hereditary Breast and Ovarian Cancer Risk.Journal of genetic counseling · 2017Article
- Exploration of Male Attitudes on Partnerships and Sexuality with Female BRCA1/2 Mutation Carriers.Journal of genetic counseling · 2016Article
- Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis.Journal of community genetics · 2016Article
- In their own words: treating very young BRCA1/2 mutation-positive women with care and caution.PloS one · 2014Article
- A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25.Journal of genetic counseling · 2013Article
- Families' experience of oncogenetic counselling: accounts from a heterogeneous hereditary cancer risk population.Familial cancer · 2012Article
- "My funky genetics": BRCA1/2 mutation carriers' understanding of genetic inheritance and reproductive merger in the context of new reprogenetic technologies.Families, systems & health : the journal of collaborative family healthcare · 2012Article
- "In sickness and in health"? Disclosures of genetic risks in dating.Journal of genetic counseling · 2011Article
- "When I Look in the Mirror, I Want to See a Healthy Body": The Lived Experience of Young Previvors, Bilateral Risk-Reducing Mastectomy, and Body Image.Global qualitative nursing researchArticle
- Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence.Journal of psychosocial oncologyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
BRCA1/2-positive women who learn their mutation status early in the life-course face unique challenges related to navigating the tasks of young adulthood. Using qualitative methods and grounded theory, the authors analyzed in-depth interviews with 11 women aged 26 to 35 who learned their mutation status before marriage. Their narratives illustrate the complexity of relationship formation, and highlight the potential for relationship-bonding and intimacy-building in the course of sharing mutation information. Disclosing BRCA mutation status to dating partners is often preceded by feelings of fear and anxiety, yet many participants reported that doing so has positive effects on relationships. Partners' abilities to respond with interest, empathy, and affection are associated with in creased future intimacy, consistent with generally accepted principles within the family/couple systems field. Individual cancer risk perception and familial cancer experiences may affect the disclosure experience, which can be understood via Attachment Theory. Our findings provide clinical insight, identify new areas for research, and suggest ways to assist this unique population in their adjustment to being BRCA mutation-positive.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.