ArticleIndian journal of palliative care2014
Poor health related quality of life among patients of sickle cell disease.
Article in Indian journal of palliative care, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03291613 (PINPOINT), which is not on this map. Cited by 14 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
PINPOINT: Gaming Technology to Engage Adolescent Sickle Cell Patients in Precision Pain Management
Who cites it
14 citing papers in PubMed, 42 citations in OpenAlex.
- Health-related quality of life among patients with sickle cell disease in the hereditary blood disease center in Saudi Arabia.Medicine · 2026Article
- Bidirectional Relationship Between Sickle Cell Disease and Food Insecurity: Scoping Review.Health equity · 2024Article
- Mitochondria: Emerging Consequential in Sickle Cell Disease.Journal of clinical medicine · 2023Review
- The impact of Hydroxyurea on the rates of Vaso-occlusive crises in patients with sickle cell disease in Saudi Arabia: a single-center study.BMC emergency medicine · 2022Article
- Validation of patient-reported vaso-occlusive crisis day as an endpoint in sickle cell disease studies.European journal of haematology · 2022Article
- Parent-reported sleep problems in children and adolescents with sickle cell disease: relationship to health-related quality of life.Archives of medical science : AMS · 2022Article
- Analysis of Causes of Hospitalization Among Children with Sickle Cell Disease in a Group of Private Hospitals in Jeddah, Saudi Arabia.Journal of blood medicine · 2021Article
- Assessment of health-related quality of life among adults hospitalized with sickle cell disease vaso-occlusive crisis.Blood advances · 2020Article
- Hemoglobin F as a predictor of health-related quality of life in children with sickle cell anemia.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
- Prescription audit in a paediatric sickle cell clinic in South-West Nigeria: A cross-sectional retrospective study.Malawi medical journal : the journal of Medical Association of Malawi · 2017Article
- Health-related quality of life in patients with sickle cell disease in Saudi Arabia.Health and quality of life outcomes · 2015Article
- The financial burden of sickle cell disease on households in Ekiti, Southwest Nigeria.ClinicoEconomics and outcomes research : CEOR · 2015Article
- Depression among Sickle Cell Anemia Patients in the Eastern Province of Saudi Arabia.Saudi journal of medicine & medical sciencesArticle
- Determinants of Psychosocial Health-related Quality of Life of Adults with Sickle Cell Disease in a Nigerian Setting.Nigerian medical journal : journal of the Nigeria Medical AssociationArticle
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSickle cell disease (SCD) is characterized by chronic hemolytic anemia and vascular occlusion, causing recurrent painful episodes, neuro-cognitive deficits, organ failures and death in early adulthood. Besides the medical consequences, most of the families with a child of SCD have to cope with financial and social crisis. Quality of life (QOL) is a broad multidimensional concept that usually includes subjective evaluations of both positive and negative aspects of life. Other than health; emotional well being, social dysfunction, chronic pain and fatigability are also important aspects of overall quality of life that add to the complexity of its measurement.
aimThe present case control study was designed to determine the health related quality of life (HRQoL) in patients of sickle cell disease and to compare it with patients of other chronic non-communicable diseases. SETTING AND
designCase control study conducted at tertiary health care facility of Central India. MATERIAL AND
methodsThe present study conducted to measure HRQoL among patients of SCD and patients of other chronic non-communicable diseases. A translated and pretested version of WHO SF-36 questionnaire was used to measure HRQoL.
resultsWe observed that there was significantly lower HRQoL among SCD patients.
conclusionBesides merely pharmacotherapy, restoration of overall quality of life should be the mainstay of management of patients with SCD.
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