Evidence map›Paper›PMID 25114561›Full record

ArticleHealth services insights2013

Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs).

Theresa Weldring, Sheree M S Smith

4 registry-linked trialsOpen access · goldAbstract read
In one paragraph

Article in Health services insights, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 4 registered trials, which are not on this map. Cited by 753 papers, 22 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
753citing papers in PubMed, 22 pooled it
11.5field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04248062 completednot on this mapstarted 2019, after this paper: background citation

Identification and Validation of Relevant Patient and Observer Reported Outcome Measurements in Inborn Errors of Metabolism

TypeobservationalSponsorUniversity Children's Hospital, ZurichRan2019 to 2020Enrolled69ConditionsInborn Errors of Metabolism, Urea Cycle Disorder, Maple Syrup Urine Disease, PhenylketonuriasArmsSurvey
NCT05264207 nacompletednot on this mapstarted 2022, after this paper: background citation

Nursing Students' Visits to Older Adults With Multiple Chronic Conditions: Effects on Self-care and Other Related Variables (VISITAME)

TypeinterventionalSponsorUniversidad de AlmeriaRan2022 to 2023Enrolled252ConditionsChronic DiseaseArmsNursing students' home-visit programme, Standard care from Public Andalusian Health Service
NCT06688591 nawithdrawnnot on this mapstarted 2021, after this paper: background citation

Effectiveness of an Evidence-based Multi-component Intervention Programme to Reduce Medication-related Problems Among Polymedicated Home-dwelling Older Adults: Protocol for a Multi-site Pilot Study of the OptiMed Clinical Trial

TypeinterventionalSponsorHES-SO Valais-WallisRan2021 to 2023Enrolled0ConditionsPolypharmacy, Multiple Chronic ConditionsArmsIntervention programme to optimise medication management and prevent MRPs
NCT06724029 recruitingnot on this mapstarted 2022, after this paper: background citation

Neurosurgical Outcome Network Per la Predizione Dell'Outcome in Neurochirurgia

TypeobservationalSponsorFondazione I.R.C.C.S. Istituto Neurologico Carlo BestaRan2022 to 2027Enrolled4,500ConditionsAneurysms, Arteriovenous Malformations, Cavernomas, Skull Base Tumors
3 · Its place in the literature

Who cites it

753 citing papers in PubMed, 22 syntheses or guidelines pooled it, 1,075 citations in OpenAlex.

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  4. Patient-reported outcome measures for atrial fibrillation: a systematic review and evaluation of psychometric properties of symptom severity measures.Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology · 2026
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  5. Equity, evidence and indigenous knowledges in PROMs in Australian injury research: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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  8. Social determinants of health in studies using PROMs to assess toxicities associated with immune checkpoint inhibitor treatment: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  17. Patient-reported outcome measures for cough used in interstitial lung disease: a systematic review.European respiratory review : an official journal of the European Respiratory Society · 2025
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  19. Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Pooled it
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693 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors at 1 institution in 2 countries.

Theresa WeldringResearch Nurse, Chelsea and Westminster Hospital, Fulham Road, London SW10 9NH, United Kingdom.
Sheree M S SmithDirector, Family and Community Health University Research Group, School of Nursing and Midwifery, University of Western Sydney, Sydney, NSW Australia. ; Visiting Professor, Centre for Pharmacology and Therapeutics, Imperial College, Chelsea and Westminster Campus, London, SW10 9NH, United Kingdom.
Chelsea and Westminster Hospital · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In recent years, there has been an increased focus on placing patients at the center of health care research and evaluating clinical care in order to improve their experience and ensure that research is both robust and of maximum value for the use of medicinal products, therapy, or health services. This paper provides an overview of patients' involvement in clinical research and service evaluation along with its benefits and limitations. We describe and discuss patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs), including the trends in current research. Both the patient-reported experiences measures (PREMs) and patient and public involvement (PPI) initiative for including patients in the research processes are also outlined. PROs provide reports from patients about their own health, quality of life, or functional status associated with the health care or treatment they have received. PROMs are tools and/or instruments used to report PROs. Patient report experiences through the use of PREMs, such as satisfaction scales, providing insight into the patients' experience with their care or a health service. There is increasing international attention regarding the use of PREMS as a quality indicator of patient care and safety. This reflects the ongoing health service commitment of involving patients and the public within the wider context of the development and evaluation of health care service delivery and quality improvement.

Indexed as

clinical researchpatient experiencepatient reported measurespatient reported outcomes

Identifiers

PMID25114561
PMCPMC4089835
OpenAlexW2028398671

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.