Evidence map›Paper›PMID 25114027›Full record

ArticleQualitative health research2014

Translating advances in cardiogenetics into effective clinical practice.

Louise Bordeaux Silverstein, Marina Stolerman, Nadia Hidayatallah, Thomas McDonald, Christine A Walsh, Esma Paljevic, Lilian L Cohen, Robert W Marion, David Wasserman, Siobhan M Dolan

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Qualitative health research, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Louise Bordeaux SilversteinYeshiva University, Bronx, New York, USA louisesilverstein@gmail.com.
Marina StolermanYeshiva University, Bronx, New York, USA.
Nadia HidayatallahYeshiva University, Bronx, New York, USA.
Thomas McDonaldYeshiva University, Bronx, New York, USA.
Christine A WalshYeshiva University, Bronx, New York, USA.
Esma PaljevicYeshiva University, Bronx, New York, USA.
Lilian L CohenYeshiva University, Bronx, New York, USA.
Robert W MarionYeshiva University, Bronx, New York, USA.
David WassermanYeshiva University, New York, New York, USA.
Siobhan M DolanYeshiva University, Bronx, New York, USA.

Funding

ETHICAL & SOCIAL IMPLICATIONS OF GENETIC TESTING IN THE CASE OF UNEXPECTED DEATHSRC1HL100756 · NHLBI · ALBERT EINSTEIN COLLEGE OF MEDICINE · PI DOLAN, SIOBHAN M · 2009 to 2010
$919k
NHLBI NIH HHS RC1 HL100756NHLBI NIH HHS RC1HL100756
6 · The paper itself

Abstract

In this article we describe a qualitative research study in which we explored individuals' subjective experiences of both genetic testing and cardiogenetic disorders. Using a grounded theory approach, we coded and analyzed interview and focus group transcripts from 50 participants. We found that just under half of the participants who received their diagnosis during the study reported difficulty understanding information about both the purpose of genetic testing and their cardiac disease. A high level of anxiety about genetic testing and cardiac symptoms exacerbated individuals' cognitive confusion. Participants reported both positive and negative interactions with the medical community, depending on health care professionals' knowledge of cardiogenetic disorders. Overall, participants expressed a range of attitudes--positive, negative, and ambivalent--toward genetic testing. We conclude with a discussion of the barriers to achieving effective clinical care for genetic conditions and offer suggestions for improving collaborative decision making between physicians and patients.

Indexed as

AttitudeAdultAgedArrhythmias, CardiacDecision MakingFemaleFocus GroupsGenetic TestingGrounded TheoryHumansInterviews as TopicMaleMiddle AgedPatient Care TeamPhysician-Patient RelationsQualitative Researchcommunication, medicalgeneticshealth care, interprofessionalhealth care, teamworkheart health

Identifiers

PMID25114027
PMCPMC4487807

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.