Evidence map›Paper›PMID 25103450›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2015

Soliciting views of various communities on health research: a prelude to engagement in specific research projects.

Howard L Taras, Michael W Kalichman, Gery Schulteis, Jill Dumbauld, Yvonne Bell, Fe Fidelis Seligman, Kathy D West

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Selective patient and public involvement: The promise and perils of pharmaceutical intervention for autism.Health expectations : an international journal of public participation in health care and health policy · 2018
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Howard L TarasClinical & Translational Research Institute, University of California-San Diego, La Jolla, CA, USA.
Michael W KalichmanResearch Ethics Program, University of California-San Diego, La Jolla, CA, USA.
Gery SchulteisResearch & Development, VA San Diego Healthcare System, Department of Anesthesiology, University of California-San Diego, La Jolla, CA, USA.
Jill DumbauldClinical & Translational Research Institute, University of California-San Diego, La Jolla, CA, USA.
Yvonne BellClinicas de Salud del Pueblo, Inc., Brawley, CA, USA.
Fe Fidelis SeligmanOperation Samahan, Inc, San Diego, CA, USA.
Kathy D WestEpilepsy Foundation of San Diego County, San Diego, CA, USA.

Funding

UC San Diego Clinical and Translational Research InstituteUL1TR001442 · NCATS · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI FIRESTEIN, GARY S, HOGARTH, MICHAEL · 2015 to 2024
$88.3M
San Diego Clinical and Translational Research InstituteUL1TR000100 · NCATS · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI FIRESTEIN, GARY S · 2012 to 2015
$19.7M
NCATS NIH HHS UL1 TR000100NCATS NIH HHS UL1 TR001442
6 · The paper itself

Abstract

backgroundMembers of the public are increasingly engaged in health-service and biomedical research and provide input into the content of research, design and data sharing. As there is variation among different communities on how research is perceived, to engage all sectors of the general public research institutions need to customize their approach.

objectiveThis paper explores how research institutions and community leaders can partner to determine the best ways to engage different sectors of the public in research.

designFollowing a literature review, a research institution engaged with four different sectors of the public through their respective representative community-based organizations (CBOs) by interviews with leaders, community member focus groups and a joint project.

settingSan Diego and Imperial Counties, California, United States of America (USA).

conclusionBefore embarking on more specific research projects, investigators can gain valuable insights about different communities' attitudes to, and understanding of, health services and biomedical research by interacting directly with members of the community, collaborating with community leaders, and jointly identifying steps of engagement tailored to the community.

Indexed as

Community ParticipationHealth Services ResearchCaliforniaFocus GroupsHumansInterviews as Topicbiomedicalcommunitycommunity based organizationpublicresearch

Identifiers

PMID25103450
PMCPMC4320671

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.