Evidence map›Paper›PMID 25085670›Full record

ArticleHEC forum : an interdisciplinary journal on hospitals' ethical and legal issues2015

The devil is in the details: confidentiality challenges in the age of genetics.

Barbara J Daly, Ashley Rosko, Shulin Zhang, Hillard M Lazarus

Abstract readCase Reports
PubMed Publisher
In one paragraph

Article in HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 89% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 4 institutions in 1 country.

Barbara J DalyUniversity Hospitals Case Medical Center, 11100 Euclid Avenue, Cleveland, OH, 44106, USA, barbara.daly@case.edu.
Ashley Rosko
Shulin Zhang
Hillard M Lazarus
Case Comprehensive Cancer CenterCase Western Reserve University · USThe Ohio State University · USUniversity Hospitals Case Medical Center · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This clinical case report illustrates the potential dilemmas that can arise from knowledge gained through genetic analysis. These conflicts require careful ethical analysis of presumed duties to protect patient privacy and maintain confidentiality, the duty to warn a second party of a health risk, and the duty of veracity. While the questions raised by genetic testing of one individual for disease that reveals potentially important information about relatives, such as risk for Huntington chorea or breast cancer, have been discussed, the continuing expansion in our capacity for sophisticated genetic analysis continues to present new and challenging situations. The resolution of this case and others like it requires close collaboration among the treatment team, geneticists, and clinical ethicists.

Indexed as

Ethics, MedicalAdultConfidentialityDrug TherapyGenetic TestingHumansLeukemia, Myeloid, AcuteMale

Identifiers

PMID25085670
OpenAlexW1969146959

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.