ArticleBMJ open2014
Perceived health after percutaneous pulmonary valve implantation: in-depth interviews of patients and next-of-kin.
Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
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Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Children's experiences of congenital heart disease: a systematic review of qualitative studies.European journal of pediatrics · 2018Pooled it
- Challenges in Paediatric Xenotransplantation: Ethical Components Requiring Distinct Attention in Children and Obligations to Patients and Society.Journal of bioethical inquiry · 2025Article
- Early Outcomes of Percutaneous Pulmonary Valve Implantation with Pulsta and Melody Valves: The First Report from Korea.Journal of clinical medicine · 2020Article
- In-hospital cost comparison between percutaneous pulmonary valve implantation and surgery.European journal of cardio-thoracic surgery : official journal of the European Association for Cardio-thoracic Surgery · 2017Article
- Psychosocial and clinical outcomes of percutaneous versus surgical pulmonary valve implantation.Open heartArticle
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivePercutaneous pulmonary valve implantation is an alternative to open heart surgery in selected patients with pulmonary outflow tract disorder. The technique may reduce the number of open-chest surgeries in these patients. This study was conducted to understand how the patients and their next-of-kin experienced this new treatment option.
designQualitative explorative design with individual in-depth interviews.
settingOslo University Hospital, the only cardiac centre in Norway offering advanced surgical and interventional treatment to patient with congenital heart defects, serving the whole Norwegian population.
participantsDuring a 2-year period a total of 10 patients, median age 17 (7-30) and 18 next-of-kin were consecutively selected for individual in-depth interviews 3-6 months after the pulmonary valve implantation. The verbatim transcripts were analysed using a phenomenological methodology.
resultsPatients emphasised the importance of regaining independence and taking control of daily life shortly after the new interventional treatment. Renewed hope towards treatment options was described as 'a light in the tunnel'. Next-of-kin emphasised the importance both for the patient and their family of resuming normal life quickly after the procedure. The physical burden was experienced as minor after the minimally invasive intervention, compared to their previous experience with surgical procedures.
main outcome measureThe importance of maintaining normality in everyday life for a good family function.
conclusionsThe repeated surgeries during infancy and adolescence of patients with congenital heart disease represent a heavy burden both for the patient and their family. All families especially emphasised the importance of resuming normal life quickly after each procedure. The novel technique of pulmonary valve implantation is thus a favourable approach because of minor interference in daily life.
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