ArticleHealth expectations : an international journal of public participation in health care and health policy2016
Parents' information and support needs when their child is diagnosed with type 1 diabetes: a qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it, 61 citations in OpenAlex.
- Psychosocial-Spiritual Experiences and Outcomes in Parents of Children with Type 1 Diabetes Mellitus from the Middle East and North Africa Region: A Systematic Review.Pediatric diabetes · 2024Pooled it
- Parents' experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence.BMC pediatrics · 2021Pooled it
- 'I was ready for it at the beginning': Parent experiences with early introduction of continuous glucose monitoring following their child's Type 1 diabetes diagnosis.Diabetic medicine : a journal of the British Diabetic Association · 2021Trial
- Adaptation of Trajectory of Illness Framework to Assess the Experiences of Youths Living with Type 1 Diabetes Mellitus in the Rural Areas of Limpopo Province, South Africa.International journal of environmental research and public health · 2026Article
- Process of empowerment in mothers of children with very-early-onset inflammatory bowel disease: a qualitative study.Intestinal research · 2026Article
- Health Information Behavior in Parents of Children With Congenital Heart Disease in China: Qualitative Study Through the Lens of Chinese Culture.Journal of medical Internet research · 2025Article
- Evaluating a Digitally Delivered, Multi-Modal Intervention for Parents of Children with Type 1 Diabetes: A Proof-of-Concept Study.Children (Basel, Switzerland) · 2024Article
- Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3-13.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Caregiver burden among parents of children with type 1 diabetes: A qualitative scoping review.Heliyon · 2024Article
- The Relationship Between Parent Fear of Hypoglycemia and Youth Glycemic Control Across the Recent-Onset Period in Families of Youth with Type 1 Diabetes.International journal of behavioral medicine · 2024Article
- "It changed everything we do": A mixed methods study of youth and parent experiences with a pilot exercise education intervention following new diagnosis of type 1 diabetes.Journal of diabetes and its complications · 2024Article
- Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review.Revista brasileira de enfermagem · 2023Article
- 'Much more convenient, just as effective': Experiences of starting continuous glucose monitoring remotely following Type 1 diabetes diagnosis.Diabetic medicine : a journal of the British Diabetic Association · 2022Article
- Article
- Understanding the Lived Experience of Children With Type 1 Diabetes in Kenya: Daily Routines and Adaptation Over Time.Qualitative health research · 2022Article
- A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness.Palliative medicine · 2021Article
- Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes.Children (Basel, Switzerland) · 2020Article
- Sources and Valence of Information Impacting Parents' Decisions to Use Diabetes Technologies in Young Children <8 Years Old with Type 1 Diabetes.Diabetes technology & therapeutics · 2020Article
- High anxiety and depressive symptoms in partners of type 1 diabetes persons in a sample of the Brazilian population.Diabetology & metabolic syndrome · 2020Article
- Parental depression and diabetes-specific distress after the onset of type 1 diabetes in children.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
AIM AND
objectiveThe aim of this study was to describe and explore parents' information and support needs when their child is diagnosed with type 1 diabetes, including their views about the timing and chronology of current support provision. Our objective was to identify ways in which parents could be better supported in the future. DESIGN AND
participantsSemi-structured interviews were conducted with 54 parents of children with type 1 diabetes in four paediatric diabetes clinics in Scotland. Data were analysed using an inductive, thematic approach.
findingsParents described needing more reassurance after their child was diagnosed before being given complex information about diabetes management, so they would be better placed psychologically and emotionally to absorb this information. Parents also highlighted a need for more emotional and practical support from health professionals when they first began to implement diabetes regimens at home, tailored to their personal and domestic circumstances. However, some felt unable to ask for help or believed that health professionals were unable to offer empathetic support. Whilst some parents highlighted a need for support delivered by peer parents, others who had received peer support conveyed ambivalent views about the input and advice they had received.
conclusionsOur findings suggest that professionals should consider the timing and chronology of support provision to ensure that parents' emotional and informational needs are addressed when their child is diagnosed and that practical advice and further emotional support are provided thereafter, which takes account of their day-to-day experiences of caring for their child.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.