ArticleJournal of the American Medical Informatics Association : JAMIA2015
The double-edged sword of electronic health records: implications for patient disclosure.
Article in Journal of the American Medical Informatics Association : JAMIA, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed.
- Geographical Disparities in Accessing and Utilizing Digital Health and Strategies to Mitigate These Disparities: A Literature Review.Health science reports · 2026Article
- Reframing EHR Policy in China: Towards Balanced Implementation and Ethical Foundations.Journal of evaluation in clinical practice · 2025Article
- Development and Evaluation of Clinical Decision Support for Immigrant Child Health Screening in Primary Care.Applied clinical informatics · 2025Article
- Service Users' Perspectives on an Integrated Electronic Care Record in Mental Health Care: Qualitative Vignette and Interview Study.JMIR medical informatics · 2025Article
- Does telemedicine hold the key for reproductive health care? A quantitative examination of women's intentions toward use and accurate information disclosure.Health services research · 2025Article
- Artificial Intelligence in Medical Care - Patients' Perceptions on Caregiving Relationships and Ethics: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Ethical Dimensions of Clinical Data Sharing by U.S. Health Care Organizations for Purposes beyond Direct Patient Care: Interviews with Health Care Leaders.Applied clinical informatics · 2025Article
- Collection and sharing of health information in mental health and related systems in Australia: perspectives of people who access mental health services.BMC psychiatry · 2024Article
- Patients' Use of Electronic Health Records Facilitates Patient-Centered Communication: Findings From the 2017 Health Information National Trends Survey.Journal of medical Internet research · 2024Article
- What Do We Mean by Sharing of Patient Data? DaSH: A Data Sharing Hierarchy of Privacy and Ethical Challenges.Applied clinical informatics · 2024Article
- Association between patient-provider communication and withholding information due to privacy concerns among women in the United States: an analysis of the 2011 to 2018 Health Information National Trends Survey.BMC health services research · 2023Article
- Resident Willingness to Participate in Digital Contact Tracing in a COVID-19 Hotspot: Findings From a Detroit Panel Study.JMIR public health and surveillance · 2023Article
- Disparities in patient portal access by US adults before and during the COVID-19 pandemic.JAMIA open · 2022Article
- Preclinical Alzheimer Disease and the Electronic Health Record: Balancing Confidentiality and Care.Neurology · 2022Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Use of and Experiences With Online Access to Electronic Health Records for Parents, Children, and Adolescents: Protocol for a Scoping Review.JMIR research protocols · 2022Article
- Discrimination, trust, and withholding information from providers: Implications for missing data and inequity.SSM - population health · 2022Article
- Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1): Focus Group Study.JMIR mental health · 2022Article
- Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps-A Mixed-Methods Study.International journal of environmental research and public health · 2021Article
- Privacy of electronic health records: a review of the literature.The journal of the Canadian Health Libraries Association · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveElectronic health record (EHR) systems are linked to improvements in quality of care, yet also privacy and security risks. Results from research studies are mixed about whether patients withhold personal information from their providers to protect against the perceived EHR privacy and security risks. This study seeks to reconcile the mixed findings by focusing on whether accounting for patients' global ratings of care reveals a relationship between EHR provider-use and patient non-disclosure. MATERIALS AND
methodsA nationally representative sample from the 2012 Health Information National Trends Survey was analyzed using bivariate and multivariable logit regressions to examine whether global ratings of care suppress the relationship between EHR provider-use and patient non-disclosure.
results13% of respondents reported having ever withheld information from a provider because of privacy/security concerns. Bivariate analysis showed that withholding information was unrelated to whether respondents' providers used an EHR. Multivariable analysis showed that accounting for respondents' global ratings of care revealed a positive relationship between having a provider who uses an EHR and withholding information. DISCUSSION: After accounting for global ratings of care, findings suggest that patients may non-disclose to providers to protect against the perceived EHR privacy and security risks. Despite evidence that EHRs inhibit patient disclosure, their advantages for promoting quality of care may outweigh the drawbacks.
conclusionsClinicians should leverage the EHR's value in quality of care and discuss patients' privacy concerns during clinic visits, while policy makers should consider how to address the real and perceived privacy and security risks of EHRs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.