SynthesisHealth expectations : an international journal of public participation in health care and health policy2015
Patients' views on the effectiveness of patient-held records: a systematic review and thematic synthesis of qualitative studies.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pooled it
- Systematic review on the use of patient-held health records in low-income and middle-income countries.BMJ open · 2021Pooled it
- The usefulness and acceptability of a personal health record to children and young people living with a complex health condition: A realist review of the literature.Child: care, health and development · 2019Pooled it
- Usage and Perceptions of Electronic Patient Records Experienced by Users and Nonusers in the Canton of Vaud, Switzerland: Mixed Methods Study.Journal of medical Internet research · 2026Article
- Revisiting the use and effectiveness of patient-held records in rural Malawi.BMC health services research · 2025Article
- Patient-Accessible Electronic Health Records and Information Practices in Mental Health Care Contexts: Scoping Review.Journal of medical Internet research · 2025Article
- Patients', carers' and healthcare providers' views of patient-held health records in Kerala, India: A qualitative exploratory study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Acceptability and usability of a patient portal for men with prostate cancer in follow-up care.Frontiers in digital health · 2022Article
- Implementing a Standardized Care Pathway Integrating Oncology, Palliative Care and Community Care in a Rural Region of Mid-Norway.Oncology and therapy · 2021Article
- Using Personal Genomic Data within Primary Care: A Bioinformatics Approach to Pharmacogenomics.Genes · 2020Article
- A prevalence survey of patients with indwelling urinary catheters on district nursing caseloads in the United Kingdom: The Community Urinary Catheter Management (CCaMa) Study.Journal of infection prevention · 2020Article
- Scenario-based design for a hospital setting: An exploratory study of opportunities and barriers for personal health records usage.Future healthcare journal · 2020Article
- Towards an Adoption Framework for Patient Access to Electronic Health Records: Systematic Literature Mapping Study.JMIR medical informatics · 2020Article
- The Patient-Held Active Record of Medication Status (PHARMS) study: a mixed-methods feasibility analysis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2019Article
- The E-health Literacy Demands of Australia's My Health Record: A Heuristic Evaluation of Usability.Perspectives in health information managemen · 2017Article
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo synthesise the views of patients on patient-held records (PHR) and to determine from a patient's perspective the effectiveness and any benefits or drawbacks to the PHR.
designSystematic review and thematic synthesis of qualitative studies, which investigate the perspective of patients on the effectiveness of the PHR. DATA SOURCES: Medline, CINAHL, PsychINFO, PubMed, Cochrane. REVIEW
methodsSystematic review of literature relevant to the research question and thematic synthesis involving line by line coding of the quotations from participants and the interpretations of the findings offered by authors.
resultsTen papers that reported the experiences of 455 patients were included in the thematic synthesis. Five studies focused on cancer care, two on mental health, one on antenatal care, one on chronic disease and one on learning disability. The completeness of reporting was variable. Three main themes were identified: (i) practical benefits of the PHR (having a record of one's condition, an aide memoire, useful information source and tool for sharing information across the health system); (ii) psychological benefits of the PHR (empowered to ask questions, a place to record thoughts and feelings and feeling in control); and (iii) drawbacks to the PHR (PHR imposes unwanted responsibility and ineffectiveness).
conclusionsThe effectiveness of the PHR is largely dependent upon uptake across the health system from patients and health-care providers alike. Robust qualitative studies are needed, which offer more complete reporting and examine what patients want and need from a PHR.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.