ReviewHealth expectations : an international journal of public participation in health care and health policy2016
A critical analysis of the implementation of service user involvement in primary care research and health service development using normalization process theory.
Review in Health expectations : an international journal of public participation in health care and health policy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2021Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Patient partnership in primary health care systems of the future: a structured priority setting exercise.Research involvement and engagement · 2026Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Interrogating the effectiveness of service engagement for underserved populations in complex health and social care systems: towards an equitable engagement strategy.International journal for equity in health · 2024Article
- 'ALL ABOUT MY IDEAL MENTAL HEALTH SERVICE': Users, family members and experts by experience discussing a co-designed service.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Collaborative evaluation of a pilot involvement opportunity: Cochrane Common Mental Disorders Voice of Experience College.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Evaluation of an implementation support package to increase community mental health clinicians' routine delivery of preventive care for multiple health behaviours: a non-randomised controlled trial.Implementation science communications · 2023Article
- Co-producing research on psychosis: a scoping review on barriers, facilitators and outcomes.International journal of mental health systems · 2023Article
- Sharing space at the research table: exploring public and patient involvement in a methodology priority setting partnership.Research involvement and engagement · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Article
- Patients' satisfaction on primary healthcare services in China and its associated factors during COVID-19 pandemic: A cross-sectional study.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2023Article
- The EGPRN Research Strategy for general practice in Europe.The European journal of general practice · 2022Review
- Primary healthcare professionals' experience with patient participation in healthcare service development: A qualitative study.PEC innovation · 2022Article
- Person-centred care in primary care: What works for whom, how and in what circumstances?Health & social care in the community · 2022Review
- It takes three to tango: An ethnography of triadic involvement of residents, families and nurses in long-term dementia care.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Interdisciplinary Research: An Important Contribution to Dementia Care.Journal of multidisciplinary healthcare · 2022Article
- "Nothing about us, without us"? A qualitative study of service user involvement in the development of lay-delivered psychological interventions in contexts affected by humanitarian crises.Journal of migration and health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere have been recent important advances in conceptualizing and operationalizing involvement in health research and health-care service development. However, problems persist in the field that impact on the scope for meaningful involvement to become a routine - normalized - way of working in primary care. In this review, we focus on current practice to critically interrogate factors known to be relevant for normalization - definition, enrolment, enactment and appraisal.
methodOurs was a multidisciplinary, interagency team, with community representation. We searched EBSCO host for papers from 2007 to 2011 and engaged in an iterative, reflexive approach to sampling, appraising and analysing the literature following the principles of a critical interpretive synthesis approach and using Normalization Process Theory.
findingsTwenty-six papers were chosen from 289 papers, as a purposeful sample of work that is reported as service user involvement in the field. Few papers provided a clear working definition of service user involvement. The dominant identified rationale for enrolling service users in primary care projects was linked with policy imperatives for co-governance and emancipatory ideals. The majority of methodologies employed were standard health services research methods that do not qualify as research with service users. This indicates a lack of congruence between the stated aims and methods. Most studies only reported positive outcomes, raising questions about the balance or completeness of the published appraisals.
conclusionTo improve normalization of meaningful involvement in primary care, it is necessary to encourage explicit reporting of definitions, methodological innovation to enhance co-governance and dissemination of research processes and findings.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.