ArticlePublic health genomics2014
Developing clinical cancer genetics services in resource-limited countries: the case of retinoblastoma in Kenya.
Article in Public health genomics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 31 citations in OpenAlex.
- Article
- Development and preliminary evaluation of a genetics education booklet for retinoblastoma.Journal of genetic counseling · 2025Article
- Global, regional, and national burden of retinoblastoma in children aged under 10 years from 1990 to 2021 and projections for future disease burden.Scientific reports · 2025Article
- Toward advances in retinoblastoma genetics in Kenya.Nature genetics · 2024Article
- The introduction of genetic counseling in Ethiopia: Results of a training workshop and lessons learned.PloS one · 2021Article
- Next generation sequencing of RB1gene for the molecular diagnosis of ethnic minority with retinoblastoma in Yunnan.BMC medical genetics · 2020Article
- Lessons for Patient Engagement in Research in Low- and Middle-Income Countries.Ophthalmology and therapy · 2020Article
- Parent Knowledge of Screening and Genetic Testing in Retinoblastoma.Journal of ophthalmology · 2020Article
- Optimizing G6PD testing forWellcome open research · 2020Review
- Introducing medical genetics services in Ethiopia using the MiGene Family History App.Genetics in medicine : official journal of the American College of Medical Genetics · 2019Article
- In Their Own Words: A Qualitative Study of Kenyan Breast Cancer Survivors' Knowledge, Experiences, and Attitudes Regarding Breast Cancer Genetics.Journal of global oncology · 2018Article
- "Where Does it Come from?" Experiences Among Survivors and Parents of Children with Retinoblastoma in Kenya.Journal of genetic counseling · 2018Article
- Achieving optimal cancer outcomes in East Africa through multidisciplinary partnership: a case study of the Kenyan National Retinoblastoma Strategy group.Globalization and health · 2016Article
- Retinoblastoma.Nature reviews. Disease primers · 2015Review
- Retinoblastoma genetics in India: From research to implementation.Indian journal of ophthalmology · 2015Review
- Cancer genetics education in a low- to middle-income country: evaluation of an interactive workshop for clinicians in Kenya.PloS one · 2015Article
Corrections and comments
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Authors and funding
13 authors at 5 institutions in 5 countries.
Funding
Abstract
BACKGROUND/
aimsClinical cancer genetics is an integral part of cancer control and management, yet its development as an essential medical service has been hindered in many low-and-middle-income countries. We report our experiences in developing a clinical cancer genetics service for retinoblastoma in Kenya.
methodsA genetics task force was created from within the membership of the existing Kenyan National Retinoblastoma Strategy group. The task force engaged in multiple in-person and telephone discussions, delineating experiences, opinions and suggestions for an evidence-based, culturally sensitive retinoblastoma genetics service. Discussions were recorded and thematically categorized to develop a strategy for the design and implementation of a national retinoblastoma clinical genetics service.
resultsDiscussion among the retinoblastoma genetics task force supported the development of a comprehensive genetics service that rests on 3 pillars: (1) patient and family counseling, (2) community involvement, and (3) medical education.
conclusionsA coordinated national retinoblastoma genetics task force led to the creation of a unique and relevant approach to delivering comprehensive and accurate genetic care to Kenyan retinoblastoma patients. The task force aims to stimulate innovative approaches in cancer genetics research, education and knowledge translation, taking advantage of unique opportunities offered in the African context.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.