Evidence map›Paper›PMID 25052175›Full record

ArticleBMJ open2014

Functionality and feedback: a protocol for a realist synthesis of the collation, interpretation and utilisation of PROMs data to improve patient care.

Joanne Greenhalgh, Ray Pawson, Judy Wright, Nick Black, Jose Maria Valderas, David Meads, Elizabeth Gibbons, Laurence Wood, Charlotte Wood, Chris Mills and 1 more

Abstract read
In one paragraph

Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
38citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

38 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. A systematic review of randomised controlled trials evaluating the use of patient-reported outcome measures (PROMs).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Pooled it
  3. Patient-reported outcome use in oncology: a systematic review of the impact on patient-clinician communication.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018
    Pooled it
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  12. Review
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  15. Barriers and Facilitators to the International Implementation of Standardized Outcome Measures in Clinical Cleft Practice.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2022
    Article
  16. Review
  17. Using feedback tools to enhance the quality and experience of care.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Joanne GreenhalghSchool of Sociology and Social Policy, University of Leeds, Leeds, UK.
Ray PawsonSchool of Sociology and Social Policy, University of Leeds, Leeds, UK.
Judy WrightLeeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Nick BlackLondon School of Hygiene and Tropical Medicine, London, UK.
Jose Maria ValderasUniversity of Exeter Medical School, Exeter, UK.
David MeadsLeeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Elizabeth GibbonsNuffield Department of Population Health, University of Oxford, Oxford, UK.
Laurence WoodPatient Representative, Leeds, UK.
Charlotte WoodNorthern & Yorkshire Knowledge and Intelligence Team, Public Health England, Leeds, UK.
Chris MillsLeeds West Clinical Commissioning Group, Leeds, UK.
Sonia DalkinSchool of Sociology and Social Policy, University of Leeds, Leeds, UK.

Funding

Department of Health NIHR/CS/010/024Medical Research Council MR/K02325X/1
6 · The paper itself

Abstract

introductionThe feedback and public reporting of PROMs data aims to improve the quality of care provided to patients. Existing systematic reviews have found it difficult to draw overall conclusions about the effectiveness of PROMs feedback. We aim to execute a realist synthesis of the evidence to understand by what means and in what circumstances the feedback of PROMs data leads to the intended service improvements. METHODS AND ANALYSIS: Realist synthesis involves (stage 1) identifying the ideas, assumptions or 'programme theories' which explain how PROMs feedback is supposed to work and in what circumstances and then (stage 2) reviewing the evidence to determine the extent to which these expectations are met in practice. For stage 1, six provisional 'functions' of PROMs feedback have been identified to structure our review (screening, monitoring, patient involvement, demand management, quality improvement and patient choice). For each function, we will identify the different programme theories that underlie these different goals and develop a logical map of the respective implementation processes. In stage 2, we will identify studies that will provide empirical tests of each component of the programme theories to evaluate the circumstances in which the potential obstacles can be overcome and whether and how the unintended consequences of PROMs feedback arise. We will synthesise this evidence to (1) identify the implementation processes which support or constrain the successful collation, interpretation and utilisation of PROMs data; (2) identify the implementation processes through which the unintended consequences of PROMs data arise and those where they can be avoided. ETHICS AND DISSEMINATION: The study will not require NHS ethics approval. We have secured ethical approval for the study from the University of Leeds (LTSSP-019). We will disseminate the findings of the review through a briefing paper and dissemination event for National Health Service stakeholders, conferences and peer reviewed publications.

Indexed as

Data CollectionData Interpretation, StatisticalFeedbackPatient CarePatient SatisfactionQuality ImprovementSurveys and QuestionnairesHumansfeedbackPatient Reported Outcome MeasuresPROMsRealist Synthesisservice delivery

Identifiers

PMID25052175
PMCPMC4120334

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.