ArticleJournal of women's health (2002)2014
African American women's perceptions and attitudes regarding participation in medical research: the Mayo Clinic/The Links, Incorporated partnership.
Article in Journal of women's health (2002), 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it, 49 citations in OpenAlex.
- Improving African American women's engagement in clinical research: A systematic review of barriers to participation in clinical trials.Journal of the National Medical Association · 2022Pooled it
- Improving Diversity in Recruitment: Lessons Learned During the REACH Pregnancy Circles Pilot Trial.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Understanding Motivation to Participate in Clinical Trials: Insights to Diversify Clinical Research Using Health Information National Trends Survey.Clinical and translational science · 2026Article
- Examining relationships between multifactorial health beliefs and beliefs about the social implications of genetics.Journal of health psychology · 2026Article
- Clinical Trial Participation Motivation: Role of Smoking Status.Healthcare (Basel, Switzerland) · 2025Article
- The influence of socioeconomic status on individual attitudes and experience with clinical trials.Communications medicine · 2024Article
- Understanding willingness and barriers to participate in clinical trials during pregnancy and lactation: findings from a US study.BMC pregnancy and childbirth · 2024Article
- Influences on clinical trial participation: Enhancing recruitment through a gender lens - A scoping review.Contemporary clinical trials communications · 2024Article
- Review
- Could Temperamental Features Modulate Participation in Clinical Trials?Journal of clinical medicine · 2023Article
- Psychometric testing of the breastfeeding self-efficacy scale to measure exclusive breastfeeding in African American women: a cross-sectional study.Frontiers in public health · 2023Article
- Eliminating Disparities in Cardiovascular Disease for Black Women: JACC Review Topic of the Week.Journal of the American College of Cardiology · 2022Review
- Willingness to participate in various nontherapeutic cancer research activities among urban and rural African American and Latinx healthy volunteers.Cancer causes & control : CCC · 2022Article
- Learning from Black/African American Participants: Applying the Integrated Behavioral Model to Assess Recruitment Strategies for a Glaucoma Genetic Study.Health communication · 2022Article
- Overcoming Historical Barriers: Enhancing Positive Perceptions of Medical Research Among African Americans Through a Conference-Based Workshop.Journal of general internal medicine · 2021Article
- Sex Differences in Willingness to Participate in Research Based on Study Risk Level Among a Community Sample of African Americans in North Central Florida.Journal of immigrant and minority health · 2021Article
- Twenty Years of Leading the Way among Cohort Studies in Community-Driven Outreach and Engagement: Jackson State University/Jackson Heart Study.International journal of environmental research and public health · 2021Review
- Willingness of Latinx and African Americans to Participate in Nontherapeutic Trials: It Depends on Who Runs the Research.Ethnicity & disease · 2021Article
- Review and Implications of Intergenerational Communication and Social Support in Chronic Disease Care and Participation in Health Research of Low-Income, Minority Older Adults in the United States.Frontiers in public health · 2021Review
- Developing a Culturally Informed Survey Instrument to Assess Biomedical Research Participation Among Latinos on the U.S.-Mexico Border.Qualitative health research · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveTo examine perceptions and attitudes toward health-related research participation among professional African American women.
methodsParticipants were members of an African American women's service organization, The Links, Incorporated. Data were collected via self-administered questionnaires at The Links, Incorporated 2012 National Assembly. Sociodemographics, prior research experience, intention to participate (ITP), willingness to participate (WTP) in a variety of research studies and attitudes about research participation were measured.
resultsA total of 381 surveys were analyzed. A majority of respondents were married (66%), employed (69%), and college educated (96%). Median age was 59; 38% reported prior research participation. Overall, 78% agreed with the statement, "Participation in research will mean better care," 24% agreed "Participation in research is risky" and 3% agreed "Scientists cannot be trusted." Fifty-two percent agreed with the statement, "Research conducted in the U.S. is ethical." Mean ITP in research was 4.9±1.7 on a rating scale of 1 ("definitely no") to 7 ("definitely yes"). WTP was highest for an interview study and providing a blood sample, and lowest for clinical trial and medical record review.
conclusionAttitudes toward research participation were generally favorable among professional African American women; many expressed WTP in a variety of research study types.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.