ArticleApplied clinical informatics2014
Personal health records for patients with chronic disease: a major opportunity.
Article in Applied clinical informatics, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A mobile health application use among diabetes mellitus patients: a systematic review and meta-analysis.Frontiers in endocrinology · 2024Pooled it
- Development of a minimum data set for a blockchain-based personal health records (PHRs), for patient/physician interaction in family medicine.Journal of education and health promotion · 2024Article
- A systematic review of the effectiveness of patient education through patient portals.JAMIA open · 2023Review
- Study of the factors influencing the use of MyData platform based on personal health record data sharing system.BMC medical informatics and decision making · 2022Article
- Identifying a minimum data set as a necessity to design a web-based personal health record for patients under chronic dialysis.Journal of family medicine and primary care · 2022Article
- The Association of Mobile Health Applications with Self-Management Behaviors among Adults with Chronic Conditions in the United States.International journal of environmental research and public health · 2021Observational
- Effects of Electronic Health Record Implementation and Barriers to Adoption and Use: A Scoping Review and Qualitative Analysis of the Content.Life (Basel, Switzerland) · 2020Article
- Full Radiology Report through Patient Web Portal: A Literature Review.International journal of environmental research and public health · 2020Review
- Ready for Prime Time? Using Normalization Process Theory to Evaluate Implementation Success of Personal Health Records Designed for Decision Making.Frontiers in digital health · 2020Article
- Using Clinical Notes and Natural Language Processing for Automated HIV Risk Assessment.Journal of acquired immune deficiency syndromes (1999) · 2018Article
- An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Present and Future Trends in Consumer Health Informatics and Patient-Generated Health Data.Yearbook of medical informatics · 2017Review
- Shared decision-making using personal health record technology: a scoping review at the crossroads.Journal of the American Medical Informatics Association : JAMIA · 2017Article
- Access to Electronic Personal Health Records Among Patients With Multiple Chronic Conditions: A Secondary Data Analysis.Journal of medical Internet research · 2017Article
- Acute care patient portals: a qualitative study of stakeholder perspectives on current practices.Journal of the American Medical Informatics Association : JAMIA · 2017Article
- Article
- Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Engaging African-American Veterans in Mental Health Care: Patients' Perspectives.The Journal of nervous and mental disease · 2016Article
- Assessing Commercially Available Personal Health Records for Home Health: Recommendations for Design.Applied clinical informatics · 2016Article
- Organizational strategies for promoting patient and provider uptake of personal health records.Journal of the American Medical Informatics Association : JAMIA · 2015Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPersonal health records (PHRs) connected to a physician's electronic health record system hold substantial promise for supporting and engaging patients with chronic disease.
objectivesTo explore how U.S. health care organizations are currently utilizing PHRs for chronic disease populations.
methodsA mixed methods study including semi-structured interviews and a questionnaire was conducted. A purposive sample was developed of health care organizations which were recognized as exemplars for PHRs and were high performers in national patient satisfaction surveys (H-CAHPS or CAHPS). Within each organization, participants were health IT leaders or those managing high-risk or chronic disease populations.
resultsInterviews were conducted with 30 informants and completed questionnaires were received from 16 organizations (84% response rate). Most PHRs allowed patients to access health records and educational material, message their provider, renew prescriptions and request appointments. Patient generated data was increasingly being sought and combined with messaging, resulted in greater understanding of patient health and functioning outside of the clinic visit. However for chronic disease populations, there was little targeted involvement in PHR design and few tools to help interpret and manage their conditions beyond those offered for all. The PHR was largely uncoupled from high risk population management interventions and no clear framework for future PHR development emerged.
conclusionThis technology is currently underutilized and represents a major opportunity given the potential benefits of patient engagement and shared decision making. A coherent patient-centric PHR design and evaluation strategy is required to realize its potential and maximize this natural hub for multidisciplinary care co-ordination.
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