ArticleJournal of clinical oncology : official journal of the American Society of Clinical Oncology2014
Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer.
Article in Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 3 of them syntheses that pooled it.
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Who cites it
47 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature.Patient education and counseling · 2022Pooled it
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Palliative care initiation in pediatric oncology patients: A systematic review.Cancer medicine · 2019Pooled it
- Shifting sands: How parents engage with the idea of their child's death.Palliative & supportive care · 2026Article
- Perceived severity and parental distress after positive expanded newborn screening: parent-clinician concordance and dyadic processes.European journal of pediatrics · 2026Article
- Communication in Paediatric Oncology: A Qualitative Study Exploring the Perspectives of Nurses and Parents of Children With Cancer.Nursing open · 2025Article
- Preparing for a Child's End of Life: Parent Perspectives.Pediatrics · 2025Article
- Patient, Parent, and Oncologist Perspectives and Recommendations on the Right Way to Talk About Prognosis in Advanced Childhood Cancer.JCO oncology practice · 2025Article
- Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer.JCO clinical cancer informatics · 2024Article
- Article
- Functions of patient- and family-centered pediatric cancer communication in Pakistan.Frontiers in oncology · 2024Article
- Protocol for the promoting resilience in stress management (PRISM) intervention: a multi-site randomized controlled trial for adolescents and young adults with advanced cancer.BMC palliative care · 2023Article
- Protocol for The Promoting Resilience in Stress Management (PRISM) Intervention: a multi-site randomized controlled trial for adolescents and young adults with advanced cancer.Research square · 2023Article
- The Surprise Question as a Trigger for Primary Palliative Care Interventions for Children with Advanced Heart Disease.Pediatric cardiology · 2022Article
- Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study.BMC cancer · 2022Article
- Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness.Journal of palliative medicine · 2022Article
- Palliative Care in Pediatric Oncology and Hematopoietic Stem Cell Transplantation.Current oncology reports · 2022Review
- Conflicting goals and obligations: Tensions affecting communication in pediatric oncology.Patient education and counseling · 2022Article
- Challenges of paediatric palliative care in Romania: a focus groups study.BMC palliative care · 2021Article
- In the name of the family? Against parents' refusal to disclose prognostic information to children.Medicine, health care, and philosophy · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
purposeConcordance between parents of children with advanced cancer and health care providers has not been described. We aimed to describe parent-provider concordance regarding prognosis and goals of care, including differences by cancer type. PATIENTS AND
methodsA total of 104 pediatric patients with recurrent or refractory cancer were enrolled at three large children’s hospitals. On enrollment, their parents and providers were invited to complete a survey assessing perceived prognosis and goals of care. Patients’ survival status was retrospectively abstracted from medical records. Concordance was assessed via discrepancies in perceived prognosis, statistics, and McNemar’s test. Distribution of categorical variables and survival rates across cancer type were compared with Fisher’s exact and log-rank tests, respectively.
resultsData were available from 77 dyads (74% of enrolled). Parent-provider agreement regarding prognosis and goals of care was poor (kappa, 0.12 to 0.30). Parents were more likely to report cure was likely (P < .001). The frequency of perceived likelihood of cure and the goal of cure varied by cancer type for both parents and providers (P < .001 to .004). Relatively optimistic responses were more common among parents and providers of patients with hematologic malignancies, although there were no differences in survival.
conclusionParent-provider concordance regarding prognosis and goals in advanced pediatric cancer is generally poor. Perceptions of prognosis and goals of care vary by cancer type. Understanding these differences may inform parent-provider communication and decision making.
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