Evidence map›Paper›PMID 25023130›Full record

ArticleBMJ open2014

Future Care Planning for patients approaching end-of-life with advanced heart disease: an interview study with patients, carers and healthcare professionals exploring the content, rationale and design of a randomised clinical trial.

Martin A Denvir, Gill Highet, Shirley Robertson, Sarah Cudmore, Janet Reid, Andrea Ness, Karen Hogg, Christopher Weir, Scott Murray, Kirsty Boyd

Registry-linked trialAbstract read
In one paragraph

Article in BMJ open, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02302014 (Randomised Trial of Early Versus Delayed Future Care Planning for Patients and Families Living With Advanced Heart Disease), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02302014 phase2completednot on this map

Randomised Trial of Early Versus Delayed Future Care Planning for Patients and Families Living With Advanced Heart Disease

TypeinterventionalSponsorUniversity of EdinburghRan2013 to 2015Enrolled50ConditionsAcute Coronary Syndrome, Congestive Cardiac Failure, Palliative CareArmsPalliative Care Intervention
3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Martin A DenvirDepartment of cardiology, Royal Infirmary of Edinburgh, Edinburgh, UK.
Gill HighetDepartment of Palliative Care, Royal Infirmary of Edinburgh, Edinburgh, UK.
Shirley RobertsonDepartment of cardiology, Royal Infirmary of Edinburgh, Edinburgh, UK.
Sarah CudmoreDepartment of cardiology, Royal Infirmary of Edinburgh, Edinburgh, UK.
Janet ReidDepartment of cardiology, Royal Infirmary of Edinburgh, Edinburgh, UK.
Andrea NessDepartment of cardiology, Royal Infirmary of Edinburgh, Edinburgh, UK.
Karen HoggCardiology Department, Glasgow Royal Infirmary, Glasgow, UK.
Christopher WeirEdinburgh Health Services Research Unit, Centre for Population Health Sciences, University of Edinburgh, Edinburgh, UK.
Scott MurrayPrimary Palliative Care Research Group, Community Health Sciences-General Practice, University of Edinburgh, Edinburgh, UK.
Kirsty BoydDepartment of Palliative Care, Royal Infirmary of Edinburgh, Edinburgh, UK.

Funding

Marie Curie MCCC-RP-13-A15867
6 · The paper itself

Abstract

objectiveTo explore the optimal content and design of a clinical trial of an end-of-life intervention for advanced heart disease with patients, carers and healthcare professionals.

designQualitative interview and focus group study.

settingCommunity and hospital-based focus groups and interviews.

participantsStable community-dwelling patients, informal carers (PC, n=15) and primary and secondary care based healthcare professionals (HCP, n=11).

resultsPC highlighted fragmentation of services and difficulty in accessing specialist care as key barriers to good care. They felt that time for discussion with HCP was inadequate within current National Health Service (NHS) healthcare systems. HCP highlighted uncertainty of prognosis, explaining mortality risk to patients and switching from curative to palliative approaches as key challenges. Patient selection, nature of the intervention and relevance of trial outcomes were identified by HCP as key challenges in the design of a clinical trial.

conclusionsPC and HCP expressed a number of concerns relevant to the nature and content of an end-of-life intervention for patients with advanced heart disease. The findings of this study are being used to support a phase II randomised clinical trial of Future Care Planning in advanced heart disease.

Indexed as

CaregiversHealth PersonnelHeart DiseasesPatient Care PlanningPatientsTerminal CareFocus GroupsHumansInterviews as TopicLongitudinal StudiesRandomized Controlled Trials as TopicSeverity of Illness Index

Identifiers

PMID25023130
PMCPMC4120336

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.