Ethical dilemmas in pediatric and adolescent psychogenic nonepileptic seizures.

Cristie M Cole, Tatiana Falcone, Rochelle Caplan, Jane Timmons-Mitchell, Kristine Jares, Paul J Ford

Abstract readReview

In one paragraph

Review in Epilepsy & behavior : E&B, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

"It's hard!": Adolescents' experience attending school with psychogenic nonepileptic seizures.Epilepsy & behavior : E&B · 2022
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Cristie M ColeDepartment of Bioethics, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA. Electronic address: colec@ccf.org.

Tatiana FalconeNeurological Institute, Department of Psychology and Psychiatry, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA; Epilepsy Center, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA. Electronic address: falcont1@ccf.org.

Rochelle CaplanDepartment of Psychiatry and Behavioral Services, David Geffen School of Medicine at UCLA, 150 UCLA Medical Plaza, Los Angeles, CA 90095, USA; Department of Child and Adolescent Psychiatry, Brain Research Institute, UCLA, Box 951761, Los Angeles, CA, USA. Electronic address: rcaplan@ucla.edu.

Jane Timmons-MitchellBegun Center for Violence Prevention Research and Education, Jack, Joseph and Morton Mandel School of Applied Social Sciences, Case Western Reserve University, 11402 Bellflower Road, Cleveland, OH 44106, USA. Electronic address: jct2@case.edu.

Kristine JaresDepartment of Social Work, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA.

Paul J FordDepartment of Bioethics, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA; Epilepsy Center, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA; NeuroEthics Program, Cleveland Clinic, 9500 Euclid Avenue, Cleveland, OH 44195, USA. Electronic address: fordp@ccf.org.

Funding

Brain Matters 3: Values at the Crossroads of Neurology, Psychiatry, and PsychologR13NS080513 · NINDS · CLEVELAND CLINIC LERNER COM-CWRU · PI FORD, PAUL JASON · 2012 to 2012

$25k

NINDS NIH HHS R13 NS080513NINDS NIH HHS R13NS080513

6 · The paper itself

Abstract

To date, only a very narrow window of ethical dilemmas in psychogenic nonepileptic seizures (PNES) has been explored. Numerous distinct ethical dilemmas arise in diagnosing and treating pediatric and adolescent patients with PNESs. Important ethical values at stake include trust, transparency, confidentiality, professionalism, autonomy of all stakeholders, and justice. In order to further elucidate the ethical challenges in caring for this population, an ethical analysis of the special challenges faced in four specific domains is undertaken: (1) conducting and communicating a diagnosis of PNESs, (2) advising patients about full transparency and disclosure to community including patients' peers, (3) responding to requests to continue antiepileptic drugs, and (4) managing challenges arising from school policy and procedure. An analysis of these ethical issues is essential for the advancement of best care practices that promote the overall well-being of patients and their families.

Indexed as

Ethics, MedicalAdolescentAnticonvulsantsChildChild, PreschoolCommunicationHumansSeizuresAnticonvulsantsAntiepileptic drugsCommunicationDiagnosisDisclosureDoctor shoppingPsychogenic nonepileptic seizuresSchool

Identifiers

PMID25022823

DOI10.1016/j.yebeh.2014.06.019

PMCPMC4170022

What OpenQuestion holds

Textmetadata

LicenceTDM

Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.