ArticleHealth and quality of life outcomes2014
Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: the patient perspective.
Article in Health and quality of life outcomes, 2014. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it, 45 citations in OpenAlex.
- Identifying Concepts of Physical Activity Which Are Clinically Meaningful to Patients and Care Providers: A Systematic Review of Qualitative Research.Clinical and translational science · 2025Pooled it
- Support and Its Effect for Persons Affected by COPD and Their Next of Kin - an Systematic Integrative Review.International journal of chronic obstructive pulmonary disease · 2025Pooled it
- Quality of life domains revised by people with multiple sclerosis and healthcare professionals for adaptive measure development.PloS one · 2026Article
- "A good day is just being able to breathe": Aligning COPD research with patient needs, a qualitative study.PloS one · 2025Article
- Health-related quality of life predicts prognosis in individuals with COPD hospitalized with community-acquired pneumonia - a prospective cohort study.Scientific reports · 2024Article
- Identifying domains of health-related quality of life: the perspective of individuals with low back pain.Journal of patient-reported outcomes · 2023Article
- COPD exacerbations and patient-reported outcomes according to post-bronchodilator FEVBMC pulmonary medicine · 2023Article
- Article
- Employing cognitive interviewing to evaluate, improve and validate items for measuring the health-related quality of life of women diagnosed with ovarian cancer.BMC women's health · 2022Article
- Chronic obstructive pulmonary disease patients' quality of life and its related factors: A cross-sectional study of the Jordanian population.F1000Research · 2022Article
- Psychometric validation of the Korean Patient-Reported Outcome Measurement Information System (PROMIS)-29 Profile V2.1 among patients with chronic pulmonary diseases.Journal of thoracic disease · 2021Article
- A Qualitative Metasynthesis of the Experience of Fatigue Across Five Chronic Conditions.Journal of pain and symptom management · 2020Review
- Type of clinical outcomes used by healthcare professionals to evaluate health-related quality of life domains to inform clinical decision making for chronic pain management.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
- Patients' perspective of the impact of COPD on quality of life: a focus group study for patients with COPD.International journal of clinical pharmacy · 2018Article
- Item usage in a multidimensional computerized adaptive test (MCAT) measuring health-related quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- Patient coping strategies in COPD across disease severity and quality of life: a qualitative study.NPJ primary care respiratory medicine · 2016Article
- The COPD-SIB: a newly developed disease-specific item bank to measure health-related quality of life in patients with chronic obstructive pulmonary disease.Health and quality of life outcomes · 2016Article
- Using the Three-Step Test Interview to understand how patients perceive the St. George's Respiratory Questionnaire for COPD patients (SGRQ-C).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2016Article
- Health-related quality of life in current smokers with COPD: factors associated with current smoking and new insights into sex differences.International journal of chronic obstructive pulmonary disease · 2016Article
- Identifying key domains of health-related quality of life for patients with chronic obstructive pulmonary disease: interviews with healthcare professionals.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 6 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundNumerous instruments are available to measure health-related quality of life (HRQoL) in patients with Chronic Obstructive Pulmonary Disease (COPD), covering a wide array of domains ranging from symptoms such as dyspnea, cough and wheezing, to social and emotional functioning. Currently no information or guide is available yet to aid the selection of domains for a particular study or disease population. The aim of this paper is to identify which domains of HRQoL are most important with respect to COPD, from the patient perspective.
methodsTwenty-one Dutch patients with COPD were asked to describe important domains impacted by COPD freely; second, they were presented with cues (domains from the Patient-Reported Outcomes Measurement Information System (PROMIS) framework) and were asked to select the domains that were most relevant to them. During the interview, the patients were asked to indicate in which way the selected domains impact their lives. Both the answers to the open question, and the patient statements motivating nomination of PROMIS domains were coded into themes.
resultsThe most relevant (sub)domains of HRQoL for patients with COPD were: physical health (fatigue, physical functioning), social health (instrumental support, ability to participate in social roles and activities, companionship, and emotional support), and coping with COPD.
conclusionWe identified which domains of HRQoL are most important to patients with COPD. One of these (coping with COPD) is not explicitly covered by PROMIS, or by traditional questionnaires that are used to measure HRQoL in COPD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.