ArticleJournal of National Black Nurses' Association : JNBNA2012
Voices of Adults Living with Sickle Cell Disease Pain.
Article in Journal of National Black Nurses' Association : JNBNA, 2012. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed.
- Patient Experiences of Acute Pain Communication in Sickle Cell Disease and Perspectives on Improving Clinician Communication.Journal of clinical psychology in medical settings · 2026Article
- A Scoping Review of Qualitative Studies on Inpatient Care for Individuals with Sickle Cell Disease.Journal of general internal medicine · 2026Article
- Patient Perspectives on Enhancing Clinician Communication About Pain in Sickle Cell Disease.Research square · 2025Article
- Tailoring a Digital Mental Health Program for Patients With Sickle Cell Disease: Qualitative Study.JMIR mental health · 2023Article
- Health Literacy, Perceived Stigma, Self-Efficacy, and HRQOL in Sickle Cell Disease.Western journal of nursing research · 2023Article
- Systematic online academic resources (SOAR) review: Sickle cell disorders.AEM education and training · 2022Article
- Lived Experiences of Adults with Sickle Cell Disease: A Qualitative Study, Dar es Salaam, Tanzania.The East African health research journal · 2022Article
- Communicating and understanding pain: Limitations of pain scales for patients with sickle cell disorder and other painful conditions.Journal of health psychology · 2022Article
- Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients.Journal of general internal medicine · 2019Article
- A Qualitative Study of Chronic Pain and Self-Management in Adults with Sickle Cell Disease.Journal of the National Medical Association · 2019Article
- Sleep Quality, Pain and Self-Efficacy among Community-Dwelling Adults with Sickle Cell Disease.Journal of National Black Nurses' Association : JNBNA · 2015Article
- The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica.International journal of qualitative studies on health and well-being · 2015Article
- Barriers to Care for Persons With Sickle Cell Disease: The Case Manager's Opportunity to Improve Patient Outcomes.Professional case managementArticle
- The illness of women and men with sickle cell disease: a Grounded Theory study.Revista latino-americana de enfermagemArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
The purpose of this qualitative study was to describe the lived experiences of adults with sickle cell disease-related pain. Using a qualitative, phenomenological approach, a purposive sample of 13 African-American adults living with Sickle Cell Disease (SCD) was recruited from a national SCD support group. Participants were asked to describe living with SCD-related pain and their experiences with pain management. Four themes emerged from the data: (1) description of the pain experience, (2) pain scales do not work, (3) managing pain, and (4) managing relationships. Persons living with SCD need comprehensive pain assessment from Health-Care Providers [HCPs], who recognize the impact of pain on their patients' lives. The findings support further research aimed at the assessment and management of SCD-related pain. HCPs are strategically positioned to improve health outcomes for those with SCD pain by listening to patients' unique stories and accurately assessing and effectively intervening to promote pain relief for patients living with SCD-related pain.
Indexed as
Identifiers
25003809PMC3804106What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.