ArticleJournal of health psychology2016
The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study.
Article in Journal of health psychology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it, 72 citations in OpenAlex.
- The Use of Religion in the Management of Depression in Sickle Cell Disease: A Systematic Review.Journal of religion and health · 2020Pooled it
- Stigma of Sickle Cell Disease: A Systematic Review.Issues in mental health nursing · 2018Pooled it
- Implementation of a comprehensive sickle cell center leads to improved access to care and decreased acute care use.BMC health services research · 2026Article
- Navigating pregnancy, postpartum care and reproductive autonomy with sickle cell disease in Uganda: an interpretive phenomenological study in Eastern and Central Uganda.Research square · 2026Article
- Article
- Does self-compassion moderate the relationship between stigma, pain and psychological well-being among people living with sickle cell disease in Ghana?PLOS mental health · 2026Article
- Article
- Health System-Led Multimodal and Multilevel Interventions to Reduce Sickle Cell Disease-Related Stigma Among Tribal Populations in India: An Implementation Research Protocol.Journal of racial and ethnic health disparities · 2025Article
- Indian Council of Medical Research (ICMR)-Sickle cell disease (SCD) Stigma Scale for India (ISSSI): development and psychometrics.The Lancet regional health. Southeast Asia · 2025Article
- Pulmonary Function after Nonmyeloablative Hematopoietic Cell Transplant for Sickle Cell Disease.Annals of the American Thoracic Society · 2024Article
- Impact of disease- and race-based discrimination in healthcare on pain outcomes among adults living with sickle cell disease in the United States: The mediating roles of internalized stigma and depressive symptoms.Stigma and health · 2024Article
- Beliefs negatively mediate adolescents' and adults' knowledge about sickle cell disease prevention and relationship choices; a one-center exploratory study in Central Region, Ghana.Archives of public health = Archives belges de sante publique · 2024Article
- Burden of employment loss and absenteeism in adults and caregivers of children with sickle cell disease.Blood advances · 2024Article
- "Buprenorphine, It Works so Differently": Adults with Sickle Cell Disease Describe Transitioning to Buprenorphine for Treatment of Chronic Pain.The journal of pain · 2024Article
- How young adults with sickle cell disease define "being a good patient" in the adult healthcare system.Pediatric blood & cancer · 2024Article
- Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together.Progress in community health partnerships : research, education, and action · 2024Article
- Effects of Experienced Discrimination in Pediatric Sickle Cell Disease: Caregiver and Provider Perspectives.Journal of racial and ethnic health disparities · 2023Article
- A qualitative study on stigma experienced by young adults living with sickle cell disease in Accra, Ghana.International health · 2023Article
- The Bias of Medicine in Sickle Cell Disease.Journal of general internal medicine · 2023Article
- Psychometrics of the Sickle Cell Disease Health-Related Stigma Scale-Short Form.Western journal of nursing research · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
Research about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78-5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.